An international standard set of patient-centered outcome measures after stroke

Joel Salinas, Sara M. Sprinkhuizen, Teri Ackerson, Julie Bernhardt, Charlie Davie, Mary G. George, Stephanie Gething, Adam G. Kelly, Patrice Lindsay, Liping Liu, Sheila C O Martins, Louise Morgan, Bo Norrving, Gerard M. Ribbers, Frank L. Silver, Eric E. Smith, Linda Williams, Lee H. Schwamm

Research output: Contribution to journalArticle

66 Citations (Scopus)

Abstract

Background and Purpose - Value-based health care aims to bring together patients and health systems to maximize the ratio of quality over cost. To enable assessment of healthcare value in stroke management, an international standard set of patient-centered stroke outcome measures was defined for use in a variety of healthcare settings. Methods - A modified Delphi process was implemented with an international expert panel representing patients, advocates, and clinical specialists in stroke outcomes, stroke registers, global health, epidemiology, and rehabilitation to reach consensus on the preferred outcome measures, included populations, and baseline risk adjustment variables. Results - Patients presenting to a hospital with ischemic stroke or intracerebral hemorrhage were selected as the target population for these recommendations, with the inclusion of transient ischemic attacks optional. Outcome categories recommended for assessment were survival and disease control, acute complications, and patient-reported outcomes. Patient-reported outcomes proposed for assessment at 90 days were pain, mood, feeding, selfcare, mobility, communication, cognitive functioning, social participation, ability to return to usual activities, and health-related quality of life, with mobility, feeding, selfcare, and communication also collected at discharge. One instrument was able to collect most patient-reported subdomains (9/16, 56%). Minimum data collection for risk adjustment included patient demographics, premorbid functioning, stroke type and severity, vascular and systemic risk factors, and specific treatment/care-related factors. Conclusions - A consensus stroke measure Standard Set was developed as a simple, pragmatic method to increase the value of stroke care. The set should be validated in practice when used for monitoring and comparisons across different care settings.

Original languageEnglish (US)
Pages (from-to)180-186
Number of pages7
JournalStroke
Volume47
Issue number1
DOIs
StatePublished - Jan 1 2016

Fingerprint

Stroke
Outcome Assessment (Health Care)
Risk Adjustment
Delivery of Health Care
Consensus
Communication
Social Participation
Health Services Needs and Demand
Transient Ischemic Attack
Cerebral Hemorrhage
Acute Disease
Blood Vessels
Epidemiology
Rehabilitation
Quality of Life
Demography
Costs and Cost Analysis
Pain
Survival
Health

Keywords

  • outcome
  • outcome and process assessment
  • patient-centered outcomes research
  • quality improvement
  • stroke
  • stroke care

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine
  • Clinical Neurology
  • Advanced and Specialized Nursing

Cite this

Salinas, J., Sprinkhuizen, S. M., Ackerson, T., Bernhardt, J., Davie, C., George, M. G., ... Schwamm, L. H. (2016). An international standard set of patient-centered outcome measures after stroke. Stroke, 47(1), 180-186. https://doi.org/10.1161/STROKEAHA.115.010898

An international standard set of patient-centered outcome measures after stroke. / Salinas, Joel; Sprinkhuizen, Sara M.; Ackerson, Teri; Bernhardt, Julie; Davie, Charlie; George, Mary G.; Gething, Stephanie; Kelly, Adam G.; Lindsay, Patrice; Liu, Liping; Martins, Sheila C O; Morgan, Louise; Norrving, Bo; Ribbers, Gerard M.; Silver, Frank L.; Smith, Eric E.; Williams, Linda; Schwamm, Lee H.

In: Stroke, Vol. 47, No. 1, 01.01.2016, p. 180-186.

Research output: Contribution to journalArticle

Salinas, J, Sprinkhuizen, SM, Ackerson, T, Bernhardt, J, Davie, C, George, MG, Gething, S, Kelly, AG, Lindsay, P, Liu, L, Martins, SCO, Morgan, L, Norrving, B, Ribbers, GM, Silver, FL, Smith, EE, Williams, L & Schwamm, LH 2016, 'An international standard set of patient-centered outcome measures after stroke', Stroke, vol. 47, no. 1, pp. 180-186. https://doi.org/10.1161/STROKEAHA.115.010898
Salinas J, Sprinkhuizen SM, Ackerson T, Bernhardt J, Davie C, George MG et al. An international standard set of patient-centered outcome measures after stroke. Stroke. 2016 Jan 1;47(1):180-186. https://doi.org/10.1161/STROKEAHA.115.010898
Salinas, Joel ; Sprinkhuizen, Sara M. ; Ackerson, Teri ; Bernhardt, Julie ; Davie, Charlie ; George, Mary G. ; Gething, Stephanie ; Kelly, Adam G. ; Lindsay, Patrice ; Liu, Liping ; Martins, Sheila C O ; Morgan, Louise ; Norrving, Bo ; Ribbers, Gerard M. ; Silver, Frank L. ; Smith, Eric E. ; Williams, Linda ; Schwamm, Lee H. / An international standard set of patient-centered outcome measures after stroke. In: Stroke. 2016 ; Vol. 47, No. 1. pp. 180-186.
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