Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program

Research output: Contribution to journalArticle

32 Scopus citations

Abstract

To assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program. A self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 20052006 National Survey of Children with Special Health Care Needs. Forty-four percent of surveys were returned. Average age of youth was 17.5 (1122) years old and diagnoses included cerebral palsy (36%), spina bifida (10%), developmental delay or Down syndrome (17%), and autism (6%). Most youth needed assistance with personal care (69%) and routine needs (91%) and used assistive devices (59%). Compared with the 20052006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1%), sexual health screening (16%), nutrition (34%), and exercise (41%). Youth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.

Original languageEnglish (US)
Pages (from-to)272-278
Number of pages7
JournalJournal of Adolescent Health
Volume51
Issue number3
DOIs
StatePublished - Sep 1 2012

Keywords

  • 20052006 National Survey of Children with Special Health Care Needs
  • Children with special health care needs
  • Health care needs
  • Health care surveys
  • Health service utilization
  • Transition to adulthood

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Psychiatry and Mental health
  • Public Health, Environmental and Occupational Health

Fingerprint Dive into the research topics of 'Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program'. Together they form a unique fingerprint.

  • Cite this