Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program

Jason F. Woodward, Nancy Swigonski, Mary Ciccarelli

Research output: Contribution to journalArticle

26 Citations (Scopus)

Abstract

To assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program. A self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 20052006 National Survey of Children with Special Health Care Needs. Forty-four percent of surveys were returned. Average age of youth was 17.5 (1122) years old and diagnoses included cerebral palsy (36%), spina bifida (10%), developmental delay or Down syndrome (17%), and autism (6%). Most youth needed assistance with personal care (69%) and routine needs (91%) and used assistive devices (59%). Compared with the 20052006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1%), sexual health screening (16%), nutrition (34%), and exercise (41%). Youth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.

Original languageEnglish
Pages (from-to)272-278
Number of pages7
JournalJournal of Adolescent Health
Volume51
Issue number3
DOIs
StatePublished - Sep 2012

Fingerprint

Delivery of Health Care
Health
Parents
Health Status
Health Services Needs and Demand
Health Services
Counseling
Young Adult
Self-Help Devices
Spinal Dysraphism
Reproductive Health
Cerebral Palsy
Autistic Disorder
Down Syndrome
Health Surveys
Tobacco
Demography
Surveys and Questionnaires
Databases
Exercise

Keywords

  • 20052006 National Survey of Children with Special Health Care Needs
  • Children with special health care needs
  • Health care needs
  • Health care surveys
  • Health service utilization
  • Transition to adulthood

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Psychiatry and Mental health
  • Public Health, Environmental and Occupational Health

Cite this

@article{802a270237dd409aa00fe0c4ced30633,
title = "Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program",
abstract = "To assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program. A self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 20052006 National Survey of Children with Special Health Care Needs. Forty-four percent of surveys were returned. Average age of youth was 17.5 (1122) years old and diagnoses included cerebral palsy (36{\%}), spina bifida (10{\%}), developmental delay or Down syndrome (17{\%}), and autism (6{\%}). Most youth needed assistance with personal care (69{\%}) and routine needs (91{\%}) and used assistive devices (59{\%}). Compared with the 20052006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1{\%}), sexual health screening (16{\%}), nutrition (34{\%}), and exercise (41{\%}). Youth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.",
keywords = "20052006 National Survey of Children with Special Health Care Needs, Children with special health care needs, Health care needs, Health care surveys, Health service utilization, Transition to adulthood",
author = "Woodward, {Jason F.} and Nancy Swigonski and Mary Ciccarelli",
year = "2012",
month = "9",
doi = "10.1016/j.jadohealth.2011.12.016",
language = "English",
volume = "51",
pages = "272--278",
journal = "Journal of Adolescent Health",
issn = "1054-139X",
publisher = "Elsevier USA",
number = "3",

}

TY - JOUR

T1 - Assessing the health, functional characteristics, and health needs of youth attending a noncategorical transition support program

AU - Woodward, Jason F.

AU - Swigonski, Nancy

AU - Ciccarelli, Mary

PY - 2012/9

Y1 - 2012/9

N2 - To assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program. A self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 20052006 National Survey of Children with Special Health Care Needs. Forty-four percent of surveys were returned. Average age of youth was 17.5 (1122) years old and diagnoses included cerebral palsy (36%), spina bifida (10%), developmental delay or Down syndrome (17%), and autism (6%). Most youth needed assistance with personal care (69%) and routine needs (91%) and used assistive devices (59%). Compared with the 20052006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1%), sexual health screening (16%), nutrition (34%), and exercise (41%). Youth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.

AB - To assess the health, functional characteristics, and health care service needs of youth and young adults with special health care needs attending a comprehensive, noncategorical transition program. A self-administered survey was developed from national health surveys and clinical experience to assess concepts identified as important for successful transition to adulthood. Surveys were mailed to 198 parents of youth and young adults with special health care needs attending the transition clinic. Parents were asked about the youth's health, functional status, and health care services needed. The clinical database provided demographic and patient health characteristics. Results were compared against the 20052006 National Survey of Children with Special Health Care Needs. Forty-four percent of surveys were returned. Average age of youth was 17.5 (1122) years old and diagnoses included cerebral palsy (36%), spina bifida (10%), developmental delay or Down syndrome (17%), and autism (6%). Most youth needed assistance with personal care (69%) and routine needs (91%) and used assistive devices (59%). Compared with the 20052006 National Survey of Children with Special Health Care Needs, parents reported higher needs for all services except mental health care and tobacco or substance use counseling. Forty three percent reported at least one unmet health need. Few parents reported the need for counseling on substance use (1%), sexual health screening (16%), nutrition (34%), and exercise (41%). Youth attending our transition program had more functional limitations, poorer reported health status, different diagnosis distribution, and higher levels of needed health services. Few parents identified needs for other recommended adolescent preventive services. Transition programs should assess patient health characteristics and service needs to design effective patient-centered services.

KW - 20052006 National Survey of Children with Special Health Care Needs

KW - Children with special health care needs

KW - Health care needs

KW - Health care surveys

KW - Health service utilization

KW - Transition to adulthood

UR - http://www.scopus.com/inward/record.url?scp=84865215436&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84865215436&partnerID=8YFLogxK

U2 - 10.1016/j.jadohealth.2011.12.016

DO - 10.1016/j.jadohealth.2011.12.016

M3 - Article

VL - 51

SP - 272

EP - 278

JO - Journal of Adolescent Health

JF - Journal of Adolescent Health

SN - 1054-139X

IS - 3

ER -