Biobanking and public health: Is a human rights approach the tie that binds?

Eric M. Meslin, Ibrahim Garba

Research output: Contribution to journalArticle

13 Citations (Scopus)

Abstract

Ethical principles guiding public health and genomic medicine are often at odds: whereas public health practice adopts collectivist principles that emphasize population-based benefits, recent advances in genomic and personalized medicine are grounded in an individualist ethic that privileges informed consent, and the balancing of individual risk and benefit. Indeed, the attraction of personalized medicine is the promise it holds out to help individuals get the "right medicine for the right problem at the right time." Research biobanks are an effective tool in the genomic medicine toolbox. Biobanking in public health presents a unique case study to unpack some of these issues in more detail. For example, there is a long history of using banked tissue obtained under clinical diagnostic conditions for later public health uses. But despite the collectivist approach of public health, the principles applied to the ethical challenges of biobanking (e.g. informed consent, autonomy, privacy) remain individualist. We demonstrate the value of using human rights as a public health ethics framework to address this tension in biobanking by applying it to two illustrative cases.

Original languageEnglish (US)
Pages (from-to)451-463
Number of pages13
JournalHuman genetics
Volume130
Issue number3
DOIs
StatePublished - Sep 1 2011

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Public Health
Precision Medicine
Medicine
Informed Consent
Ethics
Public Health Practice
Privacy
Research
Population

ASJC Scopus subject areas

  • Genetics
  • Genetics(clinical)

Cite this

Biobanking and public health : Is a human rights approach the tie that binds? / Meslin, Eric M.; Garba, Ibrahim.

In: Human genetics, Vol. 130, No. 3, 01.09.2011, p. 451-463.

Research output: Contribution to journalArticle

Meslin, Eric M. ; Garba, Ibrahim. / Biobanking and public health : Is a human rights approach the tie that binds?. In: Human genetics. 2011 ; Vol. 130, No. 3. pp. 451-463.
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