Development and Feasibility of SymTrak, aMulti-domain Tool for Monitoring Symptoms of Older Adults in Primary Care

Patrick Monahan, Kurt Kroenke, Christopher Callahan, Tamilyn Bakas, Amanda Harrawood, Phillip Lofton, Danielle Frye, Claire Draucker, Timothy Stump, Debra Saliba, James E. Galvin, Amanda Keegan, Mary Austrom, Malaz Boustani

Research output: Contribution to journalArticle

Abstract

BACKGROUND: A clinically practical, brief, user-friendly, multi-domain self-report and caregiver-report tool is needed for tracking actionable symptoms in primary care for elderly patients with multiple chronic conditions (MCCs). OBJECTIVE: Develop and assess usability, administration time, and internal reliability of SymTrak. DESIGN AND PARTICIPANTS: Phase I: legacy instruments, content validity, analyses of existing data, focus groups (physicians, nurses, patients, informal caregivers), and Think Aloud interviews (patients, caregivers) were used to develop SymTrak. Phase II (pilot feasibility study): 81 (27 patient-caregiver dyads, 27 patients without an identified caregiver) participants were self-administered SymTrak in clinic. MAIN MEASURES: SymTrak and demographic questions. KEY RESULTS: Consistent themes emerged from phase I focus groups. Ambiguous wording was corrected with Think Aloud feedback. In phase II, patients and caregivers preferred circling words instead of numbers for item response options. SymTrak self-administration completion time in clinic was brief; mean was 2.4, 3.0, and 3.3 min for the finalized circlingwords version, respectively, for caregivers, dyadic patients, and patients without a caregiver; and the maximum was 6.2 min for any participant. Usability questionnaire ratings were high. Cronbach's alpha for the SymTrak 23-item total score was 0.86, 0.79, and 0.81 for caregivers, dyadic patients, and patients without a caregiver, respectively. CONCLUSIONS: SymTrak demonstrates content validity, positive qualitative findings, high perceived usability, brief self-administered completion time, and good internal reliability.

Original languageEnglish (US)
Pages (from-to)915-922
Number of pages8
JournalJournal of general internal medicine
Volume34
Issue number6
DOIs
StatePublished - Jun 1 2019

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Caregivers
Primary Health Care
Focus Groups
Self Administration
Feasibility Studies
Self Report
Nurses
Demography
Interviews
Physicians

Keywords

  • aging
  • chronic disease
  • primary care
  • psychometrics
  • self-management
  • symptoms

ASJC Scopus subject areas

  • Internal Medicine

Cite this

Development and Feasibility of SymTrak, aMulti-domain Tool for Monitoring Symptoms of Older Adults in Primary Care. / Monahan, Patrick; Kroenke, Kurt; Callahan, Christopher; Bakas, Tamilyn; Harrawood, Amanda; Lofton, Phillip; Frye, Danielle; Draucker, Claire; Stump, Timothy; Saliba, Debra; Galvin, James E.; Keegan, Amanda; Austrom, Mary; Boustani, Malaz.

In: Journal of general internal medicine, Vol. 34, No. 6, 01.06.2019, p. 915-922.

Research output: Contribution to journalArticle

Monahan, Patrick ; Kroenke, Kurt ; Callahan, Christopher ; Bakas, Tamilyn ; Harrawood, Amanda ; Lofton, Phillip ; Frye, Danielle ; Draucker, Claire ; Stump, Timothy ; Saliba, Debra ; Galvin, James E. ; Keegan, Amanda ; Austrom, Mary ; Boustani, Malaz. / Development and Feasibility of SymTrak, aMulti-domain Tool for Monitoring Symptoms of Older Adults in Primary Care. In: Journal of general internal medicine. 2019 ; Vol. 34, No. 6. pp. 915-922.
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AU - Callahan, Christopher

AU - Bakas, Tamilyn

AU - Harrawood, Amanda

AU - Lofton, Phillip

AU - Frye, Danielle

AU - Draucker, Claire

AU - Stump, Timothy

AU - Saliba, Debra

AU - Galvin, James E.

AU - Keegan, Amanda

AU - Austrom, Mary

AU - Boustani, Malaz

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AB - BACKGROUND: A clinically practical, brief, user-friendly, multi-domain self-report and caregiver-report tool is needed for tracking actionable symptoms in primary care for elderly patients with multiple chronic conditions (MCCs). OBJECTIVE: Develop and assess usability, administration time, and internal reliability of SymTrak. DESIGN AND PARTICIPANTS: Phase I: legacy instruments, content validity, analyses of existing data, focus groups (physicians, nurses, patients, informal caregivers), and Think Aloud interviews (patients, caregivers) were used to develop SymTrak. Phase II (pilot feasibility study): 81 (27 patient-caregiver dyads, 27 patients without an identified caregiver) participants were self-administered SymTrak in clinic. MAIN MEASURES: SymTrak and demographic questions. KEY RESULTS: Consistent themes emerged from phase I focus groups. Ambiguous wording was corrected with Think Aloud feedback. In phase II, patients and caregivers preferred circling words instead of numbers for item response options. SymTrak self-administration completion time in clinic was brief; mean was 2.4, 3.0, and 3.3 min for the finalized circlingwords version, respectively, for caregivers, dyadic patients, and patients without a caregiver; and the maximum was 6.2 min for any participant. Usability questionnaire ratings were high. Cronbach's alpha for the SymTrak 23-item total score was 0.86, 0.79, and 0.81 for caregivers, dyadic patients, and patients without a caregiver, respectively. CONCLUSIONS: SymTrak demonstrates content validity, positive qualitative findings, high perceived usability, brief self-administered completion time, and good internal reliability.

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