Development of a congenital hypothyroidism follow-up program - The Indiana experience

Erica A. Eugster, Ora H. Pescovitz, Charmian A. Quigley, Nancy Johnson, Scott A. Rivkees

Research output: Contribution to journalReview article

1 Scopus citations


Early diagnosis and treatment of infants born with congenital hypothyroidism is essential for optimal neurocognitive outcome. After a retrospective review of the management of congenital hypothyroidism in Indiana revealed significant departures from current American Academy of Pediatrics recommendations, a formal follow-up program was designed with the goal of ensuring expedient and appropriate therapy for all affected infants in our state. The Indiana Congenital Hypothyroidism Follow-Up Program (ICHFP), which operates in conjunction with the newborn screening laboratory and state department of health, was initiated in 1996. The following report describes the basic functioning of the program, the positive impact that it has had on quality of care, and the important clinical and educational roles that ICHFP currently performs throughout the state. Our experience provides an example of an integrated and collaborative approach to the follow-up of abnormal newborn thyroid screens. As a result of successful implementation of this program, standard of care for infants diagnosed with congenital hypothyroidism in Indiana has been raised.

Original languageEnglish (US)
Pages (from-to)185-193
Number of pages9
Issue number3
StatePublished - Jan 1 2000

ASJC Scopus subject areas

  • Endocrinology, Diabetes and Metabolism

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    Eugster, E. A., Pescovitz, O. H., Quigley, C. A., Johnson, N., & Rivkees, S. A. (2000). Development of a congenital hypothyroidism follow-up program - The Indiana experience. Endocrinologist, 10(3), 185-193.