Disease awareness, cognitive decline, and communication in persons with mild cognitive impairment and caregivers

Research output: Chapter in Book/Report/Conference proceedingChapter

1 Scopus citations

Abstract

The purpose of this chapter, which is based on our pilot research, is four-fold: 1) to describe the awareness of persons with mild cognitive impairment (PwMCI) of their cognitive changes and meaning of the diagnosis, and their family caregivers' perceptions of the same; 2) to identify PwMCI's concerns about living with MCI; 3) to discuss PwMCI and caregiver perceptions of a patient- and family-centered daily enhancement of meaningful activity (DEMA) program; and 4) to describe the potential benefits of DEMA using case examples. Discussion is based on findings from interviews with PwMCI and family caregivers designed to explore awareness of cognitive changes and the diagnosis, as well as experiences living with MCI. In addition, results from three focus groups to assess content validity and acceptability of the program and from a pilot intervention study to evaluate the feasibility and acceptability of the program contributed to the discussion. Findings support further testing of DEMA in larger and more diverse samples.

Original languageEnglish (US)
Title of host publicationPsychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease
PublisherIGI Global
Pages254-270
Number of pages17
ISBN (Electronic)9781466684799
ISBN (Print)146668478X, 9781466684782
DOIs
StatePublished - Aug 31 2015

ASJC Scopus subject areas

  • Health Professions(all)
  • Medicine(all)
  • Psychology(all)

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    Lu, Y. Y. F., & Austrom, M. G. (2015). Disease awareness, cognitive decline, and communication in persons with mild cognitive impairment and caregivers. In Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease (pp. 254-270). IGI Global. https://doi.org/10.4018/978-1-4666-8478-2.ch011