Family patterns of decision-making in pediatric clinical trials

Julia A. Snethen, Marion E. Broome, Kathleen Knafl, Janet A. Deatrick, Denise B. Angst

Research output: Contribution to journalArticle

46 Scopus citations


The decision-making process related to a child's participation in clinical trials often involves multiple family members. The aim of this study was to compare family patterns of decision-making within and across family units in pediatric clinical trials. Participants for this secondary analysis included 14 families from a larger study of informed consent. Four distinct patterns of decision-making were identified: Exclusionary, informative, collaborative, and delegated. These patterns varied with regard to three dimensions of parents' decision-making goals, child level of involvement, and the parental role. These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process.

Original languageEnglish (US)
Pages (from-to)223-232
Number of pages10
JournalResearch in Nursing and Health
Issue number3
StatePublished - Jun 1 2006


  • Clinical trials
  • Decision-making
  • Family

ASJC Scopus subject areas

  • Nursing(all)

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    Snethen, J. A., Broome, M. E., Knafl, K., Deatrick, J. A., & Angst, D. B. (2006). Family patterns of decision-making in pediatric clinical trials. Research in Nursing and Health, 29(3), 223-232.