Family patterns of decision-making in pediatric clinical trials

Julia A. Snethen, Marion E. Broome, Kathleen Knafl, Janet A. Deatrick, Denise B. Angst

Research output: Contribution to journalArticle

43 Citations (Scopus)

Abstract

The decision-making process related to a child's participation in clinical trials often involves multiple family members. The aim of this study was to compare family patterns of decision-making within and across family units in pediatric clinical trials. Participants for this secondary analysis included 14 families from a larger study of informed consent. Four distinct patterns of decision-making were identified: Exclusionary, informative, collaborative, and delegated. These patterns varied with regard to three dimensions of parents' decision-making goals, child level of involvement, and the parental role. These patterns of decision-making affect how parents and children communicate with health professionals and influence the effectiveness of health care providers interactions with the family related to the decision-making process.

Original languageEnglish
Pages (from-to)223-232
Number of pages10
JournalResearch in Nursing and Health
Volume29
Issue number3
DOIs
StatePublished - Jun 2006

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Decision Making
Clinical Trials
Pediatrics
Parents
Informed Consent
Health Personnel
Health

Keywords

  • Clinical trials
  • Decision-making
  • Family

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Snethen, J. A., Broome, M. E., Knafl, K., Deatrick, J. A., & Angst, D. B. (2006). Family patterns of decision-making in pediatric clinical trials. Research in Nursing and Health, 29(3), 223-232. https://doi.org/10.1002/nur.20130

Family patterns of decision-making in pediatric clinical trials. / Snethen, Julia A.; Broome, Marion E.; Knafl, Kathleen; Deatrick, Janet A.; Angst, Denise B.

In: Research in Nursing and Health, Vol. 29, No. 3, 06.2006, p. 223-232.

Research output: Contribution to journalArticle

Snethen, JA, Broome, ME, Knafl, K, Deatrick, JA & Angst, DB 2006, 'Family patterns of decision-making in pediatric clinical trials', Research in Nursing and Health, vol. 29, no. 3, pp. 223-232. https://doi.org/10.1002/nur.20130
Snethen, Julia A. ; Broome, Marion E. ; Knafl, Kathleen ; Deatrick, Janet A. ; Angst, Denise B. / Family patterns of decision-making in pediatric clinical trials. In: Research in Nursing and Health. 2006 ; Vol. 29, No. 3. pp. 223-232.
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