Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting

Robert Gramling, Susan Stanek, Susan Ladwig, Elizabeth Gajary-Coots, Jenica Cimino, Wendy Anderson, Sally A. Norton, Rebecca A. Aslakson, Katherine Ast, Ronit Elk, Kimberly K. Garner, Corita Grudzen, Arif H. Kamal, Sangeeta Lamba, Thomas W. Leblanc, Ramona L. Rhodes, Eric Roeland, Dena Schulman-Green, Kathleen T. Unroe

Research output: Contribution to journalArticle

10 Scopus citations

Abstract

Context As endorsed by the palliative care "Measuring What Matters" initiative, capturing patients' direct assessment of their care is essential for ongoing quality reporting and improvement. Fostering an environment where seriously ill patients feel heard and understood is of crucial importance to modern health care. Objectives To describe the development and performance of a self-report field measure for seriously ill patients to report how well they feel heard and understood in the hospital environment. Methods As part of a larger ongoing cohort study of inpatient palliative care, we developed and administered the following point-of-care item: "Over the past two days, how much have you felt heard and understood by the doctors, nurses and hospital staff?" (completely, quite a bit, moderately, slightly, not at all). Participants completed the measure before and the day after palliative care consultation. For the postconsultation version, we changed the time frame from "past two days" to "today." Results One hundred sixty patients with advanced cancer completed the preconsultation assessment, and 87% of them completed the postconsultation version. Responses encompassed full use of the ordinal scale, did not exhibit ceiling or floor effects, and showed improvement from preassessment to postassessment. The item was quick to administer and easy for patients to complete. Conclusion The "Heard & Understood" item is a promising self-report quality measure for the inpatient palliative care setting.

Original languageEnglish (US)
Pages (from-to)150-154
Number of pages5
JournalJournal of Pain and Symptom Management
Volume51
Issue number2
DOIs
StatePublished - Feb 1 2016

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Keywords

  • Quality improvement
  • communication
  • palliative care
  • quality indicators
  • quality of care

ASJC Scopus subject areas

  • Nursing(all)
  • Clinical Neurology
  • Anesthesiology and Pain Medicine

Cite this

Gramling, R., Stanek, S., Ladwig, S., Gajary-Coots, E., Cimino, J., Anderson, W., Norton, S. A., Aslakson, R. A., Ast, K., Elk, R., Garner, K. K., Grudzen, C., Kamal, A. H., Lamba, S., Leblanc, T. W., Rhodes, R. L., Roeland, E., Schulman-Green, D., & Unroe, K. T. (2016). Feeling Heard and Understood: A Patient-Reported Quality Measure for the Inpatient Palliative Care Setting. Journal of Pain and Symptom Management, 51(2), 150-154. https://doi.org/10.1016/j.jpainsymman.2015.10.018