Health disparities in patients with pulmonary arterial hypertension: A blueprint for action: An official American thoracic society statement

Arunabh Talwar, Joe G.N. Garcia, Halley Tsai, Matthew Moreno, Tim Lahm, Roham T. Zamanian, Roberto Machado, Steven M. Kawut, Mona Selej, Stephen Mathai, Laura Hoyt D'Anna, Sonu Sahni, Erik J. Rodriquez, Richard Channick, Karen Fagan, Michael Gray, Jessica Armstrong, Josanna Rodriguez Lopez, Vinicio De Jesus Perez

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

Background: Health disparities have a major impact in the quality of life and clinical care received by minorities in the United States. Pulmonary arterial hypertension (PAH) is a rare cardiopulmonary disorder that affects children and adults and that, if untreated, results in premature death. The impact of health disparities in the diagnosis, treatment, and clinical outcome of patients with PAH has not been systematically investigated. Objectives: The specific goals of this research statement were to conduct a critical review of the literature concerning health disparities in PAH, identify major research gaps and prioritize direction for future research. Methods: Literature searches from multiple reference databases were performed using medical subject headings and text words for pulmonary hypertension and health disparities. Members of the committee discussed the evidence and provided recommendations for future research. Results: Few studies were found discussing the impact of health disparities in PAH. Using recent research statements focused on health disparities, the group identified six major study topics that would help address the contribution of health disparities to PAH. Representative studies in each topic were discussed and specific recommendations were made by the group concerning the most urgent questions to address in future research studies. Conclusions: At present, there are few studies that address health disparities in PAH. Given the potential adverse impact of health disparities, we recommend that research efforts be undertaken to address the topics discussed in the document. Awareness of health disparities will likely improve advocacy efforts, public health policy and the quality of care of vulnerable populations with PAH.

Original languageEnglish (US)
Pages (from-to)e32-e47
JournalAmerican Journal of Respiratory and Critical Care Medicine
Volume196
Issue number8
DOIs
StatePublished - Oct 15 2017

Fingerprint

Pulmonary Hypertension
Thorax
Health
Research
Medical Subject Headings
Committee Membership
Premature Mortality
Quality of Health Care
Vulnerable Populations
Public Policy
Health Policy
Public Health
Quality of Life
Databases

Keywords

  • Genetics
  • Health disparities
  • Health policy
  • Pulmonary hypertension

ASJC Scopus subject areas

  • Pulmonary and Respiratory Medicine
  • Critical Care and Intensive Care Medicine

Cite this

Health disparities in patients with pulmonary arterial hypertension : A blueprint for action: An official American thoracic society statement. / Talwar, Arunabh; Garcia, Joe G.N.; Tsai, Halley; Moreno, Matthew; Lahm, Tim; Zamanian, Roham T.; Machado, Roberto; Kawut, Steven M.; Selej, Mona; Mathai, Stephen; D'Anna, Laura Hoyt; Sahni, Sonu; Rodriquez, Erik J.; Channick, Richard; Fagan, Karen; Gray, Michael; Armstrong, Jessica; Lopez, Josanna Rodriguez; De Jesus Perez, Vinicio.

In: American Journal of Respiratory and Critical Care Medicine, Vol. 196, No. 8, 15.10.2017, p. e32-e47.

Research output: Contribution to journalArticle

Talwar, A, Garcia, JGN, Tsai, H, Moreno, M, Lahm, T, Zamanian, RT, Machado, R, Kawut, SM, Selej, M, Mathai, S, D'Anna, LH, Sahni, S, Rodriquez, EJ, Channick, R, Fagan, K, Gray, M, Armstrong, J, Lopez, JR & De Jesus Perez, V 2017, 'Health disparities in patients with pulmonary arterial hypertension: A blueprint for action: An official American thoracic society statement', American Journal of Respiratory and Critical Care Medicine, vol. 196, no. 8, pp. e32-e47. https://doi.org/10.1164/rccm.201709-1821ST
Talwar, Arunabh ; Garcia, Joe G.N. ; Tsai, Halley ; Moreno, Matthew ; Lahm, Tim ; Zamanian, Roham T. ; Machado, Roberto ; Kawut, Steven M. ; Selej, Mona ; Mathai, Stephen ; D'Anna, Laura Hoyt ; Sahni, Sonu ; Rodriquez, Erik J. ; Channick, Richard ; Fagan, Karen ; Gray, Michael ; Armstrong, Jessica ; Lopez, Josanna Rodriguez ; De Jesus Perez, Vinicio. / Health disparities in patients with pulmonary arterial hypertension : A blueprint for action: An official American thoracic society statement. In: American Journal of Respiratory and Critical Care Medicine. 2017 ; Vol. 196, No. 8. pp. e32-e47.
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abstract = "Background: Health disparities have a major impact in the quality of life and clinical care received by minorities in the United States. Pulmonary arterial hypertension (PAH) is a rare cardiopulmonary disorder that affects children and adults and that, if untreated, results in premature death. The impact of health disparities in the diagnosis, treatment, and clinical outcome of patients with PAH has not been systematically investigated. Objectives: The specific goals of this research statement were to conduct a critical review of the literature concerning health disparities in PAH, identify major research gaps and prioritize direction for future research. Methods: Literature searches from multiple reference databases were performed using medical subject headings and text words for pulmonary hypertension and health disparities. Members of the committee discussed the evidence and provided recommendations for future research. Results: Few studies were found discussing the impact of health disparities in PAH. Using recent research statements focused on health disparities, the group identified six major study topics that would help address the contribution of health disparities to PAH. Representative studies in each topic were discussed and specific recommendations were made by the group concerning the most urgent questions to address in future research studies. Conclusions: At present, there are few studies that address health disparities in PAH. Given the potential adverse impact of health disparities, we recommend that research efforts be undertaken to address the topics discussed in the document. Awareness of health disparities will likely improve advocacy efforts, public health policy and the quality of care of vulnerable populations with PAH.",
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AU - Lahm, Tim

AU - Zamanian, Roham T.

AU - Machado, Roberto

AU - Kawut, Steven M.

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AU - Mathai, Stephen

AU - D'Anna, Laura Hoyt

AU - Sahni, Sonu

AU - Rodriquez, Erik J.

AU - Channick, Richard

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AU - Gray, Michael

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N2 - Background: Health disparities have a major impact in the quality of life and clinical care received by minorities in the United States. Pulmonary arterial hypertension (PAH) is a rare cardiopulmonary disorder that affects children and adults and that, if untreated, results in premature death. The impact of health disparities in the diagnosis, treatment, and clinical outcome of patients with PAH has not been systematically investigated. Objectives: The specific goals of this research statement were to conduct a critical review of the literature concerning health disparities in PAH, identify major research gaps and prioritize direction for future research. Methods: Literature searches from multiple reference databases were performed using medical subject headings and text words for pulmonary hypertension and health disparities. Members of the committee discussed the evidence and provided recommendations for future research. Results: Few studies were found discussing the impact of health disparities in PAH. Using recent research statements focused on health disparities, the group identified six major study topics that would help address the contribution of health disparities to PAH. Representative studies in each topic were discussed and specific recommendations were made by the group concerning the most urgent questions to address in future research studies. Conclusions: At present, there are few studies that address health disparities in PAH. Given the potential adverse impact of health disparities, we recommend that research efforts be undertaken to address the topics discussed in the document. Awareness of health disparities will likely improve advocacy efforts, public health policy and the quality of care of vulnerable populations with PAH.

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