Implementation and sustainability of statewide transition support services for youth with intellectual and physical disabilities

Mary Ciccarelli, Matthew W. Brown, Erin B. Gladstone, Jason F. Woodward, Nancy Swigonski

Research output: Contribution to journalArticle

4 Citations (Scopus)

Abstract

PURPOSE: Significant gaps in care and limited existing models establish the need to innovate systems of care for youth with special health care needs in the transition between pediatric to adult health care settings. METHODS: Using implementation science, a statewide transition support program was created. University and community partners explored needs and adopted a strategic plan and funding sources. The existing consensus statement provided a framework. A team was hired, policies were piloted and the initial ambulatory consultative transition service for youth with special needs ages 11 to 22 was launched. Full program activities during year four were analyzed. RESULTS: During 2011, there were 139 consultations for youth with intellectual disability and/or physical disability (average 16.74 years, 46% female). Services include routine and focused co-morbidity screening and recommendations, care coordination of complex health and community service needs, and support for families. The evolving transdisciplinary team adapted their methods to collaborate with a growing population of youth and primary care providers. CONCLUSION: A statewide transition support program is a viable delivery model to provide needed resources for youth, families and primary care practices. Weekly improvement meetings continue to adapt services to sustain family satisfaction and community provider satisfaction.

Original languageEnglish
Pages (from-to)93-104
Number of pages12
JournalJournal of Pediatric Rehabilitation Medicine
Volume7
Issue number1
DOIs
StatePublished - 2014

Fingerprint

Intellectual Disability
Primary Health Care
Delivery of Health Care
Social Welfare
Health Services Needs and Demand
Coordination Complexes
Consensus
Referral and Consultation
Pediatrics
Morbidity
Population

Keywords

  • Adolescent health services
  • consultation and referral
  • implementation science
  • intellectual disability
  • physical disability
  • program development
  • transition to adult care
  • youth with special health care needs

ASJC Scopus subject areas

  • Rehabilitation
  • Physical Therapy, Sports Therapy and Rehabilitation
  • Pediatrics, Perinatology, and Child Health
  • Medicine(all)

Cite this

Implementation and sustainability of statewide transition support services for youth with intellectual and physical disabilities. / Ciccarelli, Mary; Brown, Matthew W.; Gladstone, Erin B.; Woodward, Jason F.; Swigonski, Nancy.

In: Journal of Pediatric Rehabilitation Medicine, Vol. 7, No. 1, 2014, p. 93-104.

Research output: Contribution to journalArticle

@article{a412dcdd4bfb40dbb5653761d300de82,
title = "Implementation and sustainability of statewide transition support services for youth with intellectual and physical disabilities",
abstract = "PURPOSE: Significant gaps in care and limited existing models establish the need to innovate systems of care for youth with special health care needs in the transition between pediatric to adult health care settings. METHODS: Using implementation science, a statewide transition support program was created. University and community partners explored needs and adopted a strategic plan and funding sources. The existing consensus statement provided a framework. A team was hired, policies were piloted and the initial ambulatory consultative transition service for youth with special needs ages 11 to 22 was launched. Full program activities during year four were analyzed. RESULTS: During 2011, there were 139 consultations for youth with intellectual disability and/or physical disability (average 16.74 years, 46{\%} female). Services include routine and focused co-morbidity screening and recommendations, care coordination of complex health and community service needs, and support for families. The evolving transdisciplinary team adapted their methods to collaborate with a growing population of youth and primary care providers. CONCLUSION: A statewide transition support program is a viable delivery model to provide needed resources for youth, families and primary care practices. Weekly improvement meetings continue to adapt services to sustain family satisfaction and community provider satisfaction.",
keywords = "Adolescent health services, consultation and referral, implementation science, intellectual disability, physical disability, program development, transition to adult care, youth with special health care needs",
author = "Mary Ciccarelli and Brown, {Matthew W.} and Gladstone, {Erin B.} and Woodward, {Jason F.} and Nancy Swigonski",
year = "2014",
doi = "10.3233/PRM-140274",
language = "English",
volume = "7",
pages = "93--104",
journal = "Journal of Pediatric Rehabilitation Medicine",
issn = "1874-5393",
publisher = "IOS Press",
number = "1",

}

TY - JOUR

T1 - Implementation and sustainability of statewide transition support services for youth with intellectual and physical disabilities

AU - Ciccarelli, Mary

AU - Brown, Matthew W.

AU - Gladstone, Erin B.

AU - Woodward, Jason F.

AU - Swigonski, Nancy

PY - 2014

Y1 - 2014

N2 - PURPOSE: Significant gaps in care and limited existing models establish the need to innovate systems of care for youth with special health care needs in the transition between pediatric to adult health care settings. METHODS: Using implementation science, a statewide transition support program was created. University and community partners explored needs and adopted a strategic plan and funding sources. The existing consensus statement provided a framework. A team was hired, policies were piloted and the initial ambulatory consultative transition service for youth with special needs ages 11 to 22 was launched. Full program activities during year four were analyzed. RESULTS: During 2011, there were 139 consultations for youth with intellectual disability and/or physical disability (average 16.74 years, 46% female). Services include routine and focused co-morbidity screening and recommendations, care coordination of complex health and community service needs, and support for families. The evolving transdisciplinary team adapted their methods to collaborate with a growing population of youth and primary care providers. CONCLUSION: A statewide transition support program is a viable delivery model to provide needed resources for youth, families and primary care practices. Weekly improvement meetings continue to adapt services to sustain family satisfaction and community provider satisfaction.

AB - PURPOSE: Significant gaps in care and limited existing models establish the need to innovate systems of care for youth with special health care needs in the transition between pediatric to adult health care settings. METHODS: Using implementation science, a statewide transition support program was created. University and community partners explored needs and adopted a strategic plan and funding sources. The existing consensus statement provided a framework. A team was hired, policies were piloted and the initial ambulatory consultative transition service for youth with special needs ages 11 to 22 was launched. Full program activities during year four were analyzed. RESULTS: During 2011, there were 139 consultations for youth with intellectual disability and/or physical disability (average 16.74 years, 46% female). Services include routine and focused co-morbidity screening and recommendations, care coordination of complex health and community service needs, and support for families. The evolving transdisciplinary team adapted their methods to collaborate with a growing population of youth and primary care providers. CONCLUSION: A statewide transition support program is a viable delivery model to provide needed resources for youth, families and primary care practices. Weekly improvement meetings continue to adapt services to sustain family satisfaction and community provider satisfaction.

KW - Adolescent health services

KW - consultation and referral

KW - implementation science

KW - intellectual disability

KW - physical disability

KW - program development

KW - transition to adult care

KW - youth with special health care needs

UR - http://www.scopus.com/inward/record.url?scp=84902355971&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84902355971&partnerID=8YFLogxK

U2 - 10.3233/PRM-140274

DO - 10.3233/PRM-140274

M3 - Article

C2 - 24919942

AN - SCOPUS:84902355971

VL - 7

SP - 93

EP - 104

JO - Journal of Pediatric Rehabilitation Medicine

JF - Journal of Pediatric Rehabilitation Medicine

SN - 1874-5393

IS - 1

ER -