Leveraging Health Information Exchange to Construct a Registry for Traumatic Brain Injury, Spinal Cord Injury and Stroke in Indiana

Saurabh Rahurkar, Timothy D. McFarlane, Jane Wang, Sarah Hoover, Flora Hammond, Jacob Kean, Brian Dixon

Research output: Contribution to journalArticle

Abstract

Traumatic brain injury (TBI), spinal cord injury (SCI) and stroke are conditions of interest to public health as they can result in long-term outcomes and disabilities. Specialized registries can facilitate public health surveillance, however only 4% of hospitals in the United States actively engage in electronic reporting to these registries. We leveraged electronic claims and clinical data from a health information exchange to create a statewide TBI/SCI/Stroke registry to facilitate the study of long-term outcomes and health services utilization. The registry contains 109,943 TBI patients, 9,027 SCI patients and 117,084 stroke patients with a mean of 3 years of follow-up data after injury. Additionally, the registry contains data on individual patient encounters, prescriptions and clinical variables. The high-dimensional data with large sample sizes may present a valuable informatics resource for injury research as well as public health surveillance.

Original languageEnglish (US)
Pages (from-to)1440-1449
Number of pages10
JournalAMIA ... Annual Symposium proceedings. AMIA Symposium
Volume2017
StatePublished - Jan 1 2017

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ASJC Scopus subject areas

  • Medicine(all)

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