Living in the epilepsy treatment gap in rural South India: A focused ethnography of women and problems associated with stigma

Jane R. von Gaudecker, Ann Gill Taylor, Arlene W. Keeling, Janice M. Buelow, Sailas Benjamin

Research output: Contribution to journalArticle

3 Scopus citations

Abstract

In India, women with epilepsy face unique challenges. A focused ethnography of six women within the epilepsy treatment gap was conducted in rural South India. Women were asked to describe their day-to-day lives. Data were collected through open-ended, semistructured interview questions, participant observation, and field notes. Thematic analysis was done. The disease-related stigma contributed to the women's physical, psychological, and emotional struggles; the women and their family members made every effort to conceal the disease. Educational interventions to create awareness could help women seek effective treatments for their seizures, thereby reducing the stigma and improving the quality of their lives.

Original languageEnglish (US)
Pages (from-to)753-764
Number of pages12
JournalHealth Care for Women International
Volume38
Issue number7
DOIs
StatePublished - Jul 3 2017

ASJC Scopus subject areas

  • Health Professions(all)

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