Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers

Janet Welch, Charlotte Thomas-Hawkins, Tamilyn Bakas, Susan M. McLennon, Doris M. Byers, Catherine J. Monetti, Brian Decker

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Improved patient outcomes have led to increased international interest in daily home hemodialysis as a kidney replacement therapy. Daily home hemodialysis often requires the assistance of a caregiver during and between treatments. Understanding the needs and concerns of caregivers of persons on daily home hemodialysis will inform the design of supportive interventions to improve caregiver retention and maintain their health and well-being. Using a descriptive qualitative design, the purpose of this study was to identify and describe the needs, concerns, strategies, and advice of family caregivers. Twenty-one caregivers were interviewed; five of these individuals were former caregivers of patients who had returned to outpatient hemodialysis. Data were collected via audio-recorded telephone interviews following a semistructured interview guide with five open-ended questions. A content analysis approach was used to code and analyze the data. Caregivers described needs, concerns, and strategies and offered advice in five predetermined major categories. Major findings included a need for respite services and a need for interventions to manage the emotional responses to caregiving. This study provides valuable information about relevant areas to consider when developing an intervention program for daily home hemodialysis caregivers.

Original languageEnglish
Pages (from-to)644-663
Number of pages20
JournalClinical Nursing Research
Volume23
Issue number6
DOIs
StatePublished - Dec 11 2014

Fingerprint

Home Hemodialysis
Caregivers
Interviews
Renal Replacement Therapy
Renal Dialysis
Outpatients

Keywords

  • caregiving
  • hemodialysis

ASJC Scopus subject areas

  • Nursing(all)

Cite this

Welch, J., Thomas-Hawkins, C., Bakas, T., McLennon, S. M., Byers, D. M., Monetti, C. J., & Decker, B. (2014). Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers. Clinical Nursing Research, 23(6), 644-663. https://doi.org/10.1177/1054773813495407

Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers. / Welch, Janet; Thomas-Hawkins, Charlotte; Bakas, Tamilyn; McLennon, Susan M.; Byers, Doris M.; Monetti, Catherine J.; Decker, Brian.

In: Clinical Nursing Research, Vol. 23, No. 6, 11.12.2014, p. 644-663.

Research output: Contribution to journalArticle

Welch, J, Thomas-Hawkins, C, Bakas, T, McLennon, SM, Byers, DM, Monetti, CJ & Decker, B 2014, 'Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers', Clinical Nursing Research, vol. 23, no. 6, pp. 644-663. https://doi.org/10.1177/1054773813495407
Welch J, Thomas-Hawkins C, Bakas T, McLennon SM, Byers DM, Monetti CJ et al. Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers. Clinical Nursing Research. 2014 Dec 11;23(6):644-663. https://doi.org/10.1177/1054773813495407
Welch, Janet ; Thomas-Hawkins, Charlotte ; Bakas, Tamilyn ; McLennon, Susan M. ; Byers, Doris M. ; Monetti, Catherine J. ; Decker, Brian. / Needs, Concerns, Strategies, and Advice of Daily Home Hemodialysis Caregivers. In: Clinical Nursing Research. 2014 ; Vol. 23, No. 6. pp. 644-663.
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