Negative information-seeking experiences of long-term prostate cancer survivors

Jennifer K. Bernat, Ted A. Skolarus, Sarah T. Hawley, David A. Haggstrom, May Darwish-Yassine, Daniela A. Wittmann

Research output: Contribution to journalArticle

8 Scopus citations


Purpose: Many prostate cancer survivors have lasting symptoms and disease-related concerns for which they seek information. To understand survivors’ information-seeking experiences, we examined the topics of their information searches, their overall perceptions of the search, and perceptions of their health information seeking self-efficacy (i.e., confidence in their ability to obtain information). We hypothesized that negative search experiences and lower health information seeking self-efficacy would be associated with certain survivor characteristics such as non-white race, low income, and less education. Methods: This was a retrospective study using data from the Michigan Prostate Cancer Survivor Study (state-based survey of long-term prostate cancer survivor outcomes, N = 2499, response rate = 38 %). Participants recalled their last search for information and reported the topics and overall experience. We conducted multivariable regression to examine the association between survivor characteristics and the information-seeking experience. Results: Nearly a third (31.7 %) of prostate cancer survivors (median age of 76 years and 9 years since diagnosis) reported having negative information-seeking experiences when looking for information. However, only 13.4 % reported having low health information-seeking self-efficacy. Lower income and less education were both significantly associated with negative information-seeking experiences. Conclusions: Our findings suggest that many long-term prostate cancer survivors have negative experiences when searching for information, and lower income and less education were survivor factors related to negative information-seeking experiences. Implications for cancer survivors: We advocate for ongoing, information needs assessment at the point-of-care as the survivorship experience progresses to assess and potentially improve survivors’ quality of life.

Original languageEnglish (US)
Pages (from-to)1089-1095
Number of pages7
JournalJournal of Cancer Survivorship
Issue number6
StatePublished - Dec 1 2016


  • Information seeking
  • Information support
  • Prostate cancer
  • Quality of life
  • Survivorship

ASJC Scopus subject areas

  • Oncology
  • Oncology(nursing)

Fingerprint Dive into the research topics of 'Negative information-seeking experiences of long-term prostate cancer survivors'. Together they form a unique fingerprint.

Cite this