Novice Nurses’ Experiences With Palliative and End-of-Life Communication

Verna L. Hendricks-Ferguson, Kathleen J. Sawin, Kitty Montgomery, Claretta Dupree, Celeste Phillips-Salimi, Barb Carr, Joan Haase

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Health care providers recognize that delivery of effective communication with family members of children with life-threatening illnesses is essential to palliative and end-of-life care (PC/EOL). Parents value the presence of nurses during PC/EOL of their dying child. It is vital that nurses, regardless of their years of work experience, are competent and feel comfortable engaging family members of dying children in PC/EOL discussions. This qualitative-descriptive study used focus groups to explore the PC/EOL communication perspectives of 14 novice pediatric oncology nurses (eg, with less than 1 year of experience). Audio-taped focus group discussions were reviewed to develop the following 6 theme categories: (a) Sacred Trust to Care for the Child and Family, (b) An Elephant in the Room, (c) Struggling with Emotional Unknowns, (d) Kaleidoscope of Death: Patterns and Complexity, (e) Training Wheels for Connectedness: Critical Mentors during PC/EOL of Children, and (f) Being Present with an Open Heart: Ways to Maintain Hope and Minimize Emotional Distress. To date, this is the first study to focus on PC/EOL communication perspectives of novice pediatric oncology nurses.

Original languageEnglish (US)
Pages (from-to)240-252
Number of pages13
JournalJournal of Pediatric Oncology Nursing
Volume32
Issue number4
DOIs
StatePublished - Jul 15 2015

Fingerprint

Nurses
Communication
Focus Groups
Hope
Mentors
Terminal Care
Child Care
Health Personnel
Parents
Pediatric Nurses

Keywords

  • end-of-life communication
  • palliative care
  • pediatric oncology nurses

ASJC Scopus subject areas

  • Oncology(nursing)
  • Pediatrics

Cite this

Novice Nurses’ Experiences With Palliative and End-of-Life Communication. / Hendricks-Ferguson, Verna L.; Sawin, Kathleen J.; Montgomery, Kitty; Dupree, Claretta; Phillips-Salimi, Celeste; Carr, Barb; Haase, Joan.

In: Journal of Pediatric Oncology Nursing, Vol. 32, No. 4, 15.07.2015, p. 240-252.

Research output: Contribution to journalArticle

Hendricks-Ferguson, Verna L. ; Sawin, Kathleen J. ; Montgomery, Kitty ; Dupree, Claretta ; Phillips-Salimi, Celeste ; Carr, Barb ; Haase, Joan. / Novice Nurses’ Experiences With Palliative and End-of-Life Communication. In: Journal of Pediatric Oncology Nursing. 2015 ; Vol. 32, No. 4. pp. 240-252.
@article{511924a905b74db2ad73f96cbeb9f6c0,
title = "Novice Nurses’ Experiences With Palliative and End-of-Life Communication",
abstract = "Health care providers recognize that delivery of effective communication with family members of children with life-threatening illnesses is essential to palliative and end-of-life care (PC/EOL). Parents value the presence of nurses during PC/EOL of their dying child. It is vital that nurses, regardless of their years of work experience, are competent and feel comfortable engaging family members of dying children in PC/EOL discussions. This qualitative-descriptive study used focus groups to explore the PC/EOL communication perspectives of 14 novice pediatric oncology nurses (eg, with less than 1 year of experience). Audio-taped focus group discussions were reviewed to develop the following 6 theme categories: (a) Sacred Trust to Care for the Child and Family, (b) An Elephant in the Room, (c) Struggling with Emotional Unknowns, (d) Kaleidoscope of Death: Patterns and Complexity, (e) Training Wheels for Connectedness: Critical Mentors during PC/EOL of Children, and (f) Being Present with an Open Heart: Ways to Maintain Hope and Minimize Emotional Distress. To date, this is the first study to focus on PC/EOL communication perspectives of novice pediatric oncology nurses.",
keywords = "end-of-life communication, palliative care, pediatric oncology nurses",
author = "Hendricks-Ferguson, {Verna L.} and Sawin, {Kathleen J.} and Kitty Montgomery and Claretta Dupree and Celeste Phillips-Salimi and Barb Carr and Joan Haase",
year = "2015",
month = "7",
day = "15",
doi = "10.1177/1043454214555196",
language = "English (US)",
volume = "32",
pages = "240--252",
journal = "Journal of Pediatric Oncology Nursing",
issn = "1043-4542",
publisher = "SAGE Publications Inc.",
number = "4",

}

TY - JOUR

T1 - Novice Nurses’ Experiences With Palliative and End-of-Life Communication

AU - Hendricks-Ferguson, Verna L.

AU - Sawin, Kathleen J.

AU - Montgomery, Kitty

AU - Dupree, Claretta

AU - Phillips-Salimi, Celeste

AU - Carr, Barb

AU - Haase, Joan

PY - 2015/7/15

Y1 - 2015/7/15

N2 - Health care providers recognize that delivery of effective communication with family members of children with life-threatening illnesses is essential to palliative and end-of-life care (PC/EOL). Parents value the presence of nurses during PC/EOL of their dying child. It is vital that nurses, regardless of their years of work experience, are competent and feel comfortable engaging family members of dying children in PC/EOL discussions. This qualitative-descriptive study used focus groups to explore the PC/EOL communication perspectives of 14 novice pediatric oncology nurses (eg, with less than 1 year of experience). Audio-taped focus group discussions were reviewed to develop the following 6 theme categories: (a) Sacred Trust to Care for the Child and Family, (b) An Elephant in the Room, (c) Struggling with Emotional Unknowns, (d) Kaleidoscope of Death: Patterns and Complexity, (e) Training Wheels for Connectedness: Critical Mentors during PC/EOL of Children, and (f) Being Present with an Open Heart: Ways to Maintain Hope and Minimize Emotional Distress. To date, this is the first study to focus on PC/EOL communication perspectives of novice pediatric oncology nurses.

AB - Health care providers recognize that delivery of effective communication with family members of children with life-threatening illnesses is essential to palliative and end-of-life care (PC/EOL). Parents value the presence of nurses during PC/EOL of their dying child. It is vital that nurses, regardless of their years of work experience, are competent and feel comfortable engaging family members of dying children in PC/EOL discussions. This qualitative-descriptive study used focus groups to explore the PC/EOL communication perspectives of 14 novice pediatric oncology nurses (eg, with less than 1 year of experience). Audio-taped focus group discussions were reviewed to develop the following 6 theme categories: (a) Sacred Trust to Care for the Child and Family, (b) An Elephant in the Room, (c) Struggling with Emotional Unknowns, (d) Kaleidoscope of Death: Patterns and Complexity, (e) Training Wheels for Connectedness: Critical Mentors during PC/EOL of Children, and (f) Being Present with an Open Heart: Ways to Maintain Hope and Minimize Emotional Distress. To date, this is the first study to focus on PC/EOL communication perspectives of novice pediatric oncology nurses.

KW - end-of-life communication

KW - palliative care

KW - pediatric oncology nurses

UR - http://www.scopus.com/inward/record.url?scp=84930886636&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84930886636&partnerID=8YFLogxK

U2 - 10.1177/1043454214555196

DO - 10.1177/1043454214555196

M3 - Article

VL - 32

SP - 240

EP - 252

JO - Journal of Pediatric Oncology Nursing

JF - Journal of Pediatric Oncology Nursing

SN - 1043-4542

IS - 4

ER -