Nursing issues in caring for children with moyamoya vasculopathy and their families

Selina Y.C. Hune, Gabrielle A. DeVeber, Daune L. MacGregor, Peter B. Dirks, Herta Wai Ham Yu, Teesta B. Soman, Anita Allen, Meredith R. Golomb

Research output: Contribution to journalArticle

Abstract

Moyamoya vasculopathy is a rare, progressive neurovascular condition that may cause recurrent transient ischemic attacks, ischemic strokes, hemorrhagic strokes, or neurologic decline in children. Children with moyamoya disease have no clear contributing etiology, but children with moyamoya syndrome have contributory diagnoses such as Down syndrome or neurofibromatosis. The concerns and lived experiences of children affected by this disease and their families have not been well explored or addressed in the nursing literature. Nurses who understand this lived experience increase their own knowledge of the disease so they can manage the complex medical issues, educate families about the disease, and provide emotional support.

Original languageEnglish (US)
Pages (from-to)33-39
Number of pages7
JournalJournal of Neuroscience Nursing
Volume39
Issue number1
DOIs
StatePublished - Jan 1 2007

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ASJC Scopus subject areas

  • Surgery
  • Endocrine and Autonomic Systems
  • Clinical Neurology
  • Medical–Surgical

Cite this

Hune, S. Y. C., DeVeber, G. A., MacGregor, D. L., Dirks, P. B., Yu, H. W. H., Soman, T. B., Allen, A., & Golomb, M. R. (2007). Nursing issues in caring for children with moyamoya vasculopathy and their families. Journal of Neuroscience Nursing, 39(1), 33-39. https://doi.org/10.1097/01376517-200702000-00007