Parental perspectives on a behavioral health music intervention for adolescent/young adult resilience during cancer treatment: Report from the children's oncology group

Sharron L. Docherty, Sheri L. Robb, Celeste Phillips-Salimi, Brooke Cherven, Kristin Stegenga, Verna Hendricks-Ferguson, Lona Roll, Molly Donovan Stickler, Joan Haase

Research output: Contribution to journalArticle

14 Scopus citations

Abstract

Purpose: This article describes parental perspectives on the helpfulness and meaningfulness of a behavioral health music therapy intervention targeted to adolescents/young adults (AYA) with cancer undergoing stem cell transplantation. We demonstrate how qualitative methods may be used to understand critical aspects of an intervention and mechanisms by which the intervention impacts the target AYA outcomes of resilience and quality of life. Methods: A qualitative descriptive design was used to obtain parents' perspectives. A maximum-variation purposive sampling technique was used to sample 16 parents whose AYA had been randomized to the intervention group. A semistructured open-ended interview was conducted between 100 and 160 days after the AYA's transplant. Results: Results were grouped into three categories: (1) helpfulness and meaningfulness of the intervention to AYA adjustment to the transplantation experience; (2) helpfulness and meaningfulness of the intervention for parents; and (3) AYA ability to participate in the intervention during the acute phase of transplant. Conclusions: Parents observed and interacted with their AYA who participated in a targeted behavioral intervention. Thus, parents were able to describe mechanisms through which the intervention was helpful and meaningful for the AYA and indirect personal benefits for themselves. The results suggest the importance of the targeted outcomes identified in the Resilience in Illness Model and mechanisms of action in the Contextual Support Model of Music Therapy, and identify approaches for future study.

Original languageEnglish (US)
Pages (from-to)170-178
Number of pages9
JournalJournal of Adolescent Health
Volume52
Issue number2
DOIs
StatePublished - Feb 1 2013

Keywords

  • Adolescent health services
  • Behavioral intervention research
  • Qualitative evaluation
  • Quality of life
  • Resilience
  • Stem cell transplantation
  • Targeted intervention

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Psychiatry and Mental health
  • Public Health, Environmental and Occupational Health

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