Patient activation in schizophrenia: Insights from stories of illness and recovery

Michelle P. Salyers, Marianne S. Matthias, Sharon Sidenbender, Amethyst Green

Research output: Contribution to journalArticlepeer-review

14 Scopus citations


Using a mixed-methods approach, we sought a deeper understanding of patient activation in 46 participants with schizophrenia. We qualitatively examined narratives for themes related to patient activation and divided the sample based on the mental health version of the patient activation measure. Participants high in patient activation described acceptance, control over illness, a wide range of activities that help them, and highlighted collaborative treatment experiences. The groups did not differ in understanding the cause of illness, what makes symptoms worse, or things they were proud of. Active management of schizophrenia mirrors physical health activation in several ways.

Original languageEnglish (US)
Pages (from-to)419-427
Number of pages9
JournalAdministration and Policy in Mental Health and Mental Health Services Research
Issue number5
StatePublished - Sep 1 2013


  • Chronic illness
  • Illness management
  • Narratives

ASJC Scopus subject areas

  • Phychiatric Mental Health
  • Health Policy
  • Public Health, Environmental and Occupational Health
  • Psychiatry and Mental health

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