Patient and caregiver reactions to clinical amyloid imaging

Joshua D. Grill, Chelsea G. Cox, Sarah Kremen, Mario F. Mendez, Edmond Teng, Jill Shapira, John M. Ringman, Liana G. Apostolova

Research output: Contribution to journalArticle

15 Scopus citations

Abstract

Introduction Amyloid imaging is a tool that has recently become available to dementia specialists evaluating patients with possible Alzheimer's disease. Studies have assessed the impact of amyloid imaging on diagnostic and treatment decisions, but patient and family perspectives have received less attention. Methods To examine how amyloid imaging affects the diagnostic experience of patients and families, we interviewed members of 26 patient-caregiver dyads with whom a neurologist discussed the option of amyloid positron emission tomography. Results Most participants who chose to undergo amyloid imaging would choose to do so again. Regardless of the scan outcome, patients and caregivers commonly expressed relief on learning the scan results. Some participants expressed expectations that were beyond scan capabilities. Discussion Amyloid imaging may provide information that patients and their families find useful. Clinicians must set correct expectations and ensure that families understand the limitations of amyloid imaging.

Original languageEnglish (US)
Pages (from-to)924-932
Number of pages9
JournalAlzheimer's and Dementia
Volume13
Issue number8
DOIs
StatePublished - Aug 2017

Keywords

  • Amyloid imaging
  • Biomarker
  • Diagnosis
  • Encounter
  • Positron emission tomography

ASJC Scopus subject areas

  • Epidemiology
  • Health Policy
  • Developmental Neuroscience
  • Clinical Neurology
  • Geriatrics and Gerontology
  • Psychiatry and Mental health
  • Cellular and Molecular Neuroscience

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    Grill, J. D., Cox, C. G., Kremen, S., Mendez, M. F., Teng, E., Shapira, J., Ringman, J. M., & Apostolova, L. G. (2017). Patient and caregiver reactions to clinical amyloid imaging. Alzheimer's and Dementia, 13(8), 924-932. https://doi.org/10.1016/j.jalz.2017.01.001