Abstract
Purpose Older adults have the highest incidence of new-onset epilepsy, yet there is a lack of self-management interventions to ensure that this population achieves desirable outcomes. In order to develop patient-centered interventions for older adults with epilepsy, self-management outcomes of importance to these patients must first be explored. The purpose of this study was to describe what outcomes older adults diagnosed with epilepsy late in life hope to achieve in self-managing their condition. Method Qualitative description was used. 20 older adults took part in semi-structured interviews. Data were analyzed using conventional content analysis. Results Six themes emerged - Maintaining Normalcy, We Want to be Involved, Well-Equipped, Seizure Freedom, Fitting Epilepsy in with Other Conditions, Incongruence with Provider Goals. Conclusion These results add to the extant literature, and provide knowledge on which patient-centered epilepsy self-management interventions can be developed. In addition, these results can inform the development of a patient-centered outcome measure for older adults with epilepsy. Such a measure could be used in conjunction with existing measures related to disease status (seizure frequency, etc.) to ensure that outcomes pertinent to both patients and providers are targeted and measured.
| Original language | English |
|---|---|
| Pages (from-to) | 592-597 |
| Number of pages | 6 |
| Journal | Seizure |
| Volume | 23 |
| Issue number | 8 |
| DOIs | |
| State | Published - 2014 |
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Keywords
- Older adults
- Patient-centered outcomes
- Qualitative research
- Self-management
ASJC Scopus subject areas
- Clinical Neurology
- Neurology
- Medicine(all)
Cite this
Patient-centered outcomes in older adults with epilepsy. / Miller, Wendy.
In: Seizure, Vol. 23, No. 8, 2014, p. 592-597.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Patient-centered outcomes in older adults with epilepsy
AU - Miller, Wendy
PY - 2014
Y1 - 2014
N2 - Purpose Older adults have the highest incidence of new-onset epilepsy, yet there is a lack of self-management interventions to ensure that this population achieves desirable outcomes. In order to develop patient-centered interventions for older adults with epilepsy, self-management outcomes of importance to these patients must first be explored. The purpose of this study was to describe what outcomes older adults diagnosed with epilepsy late in life hope to achieve in self-managing their condition. Method Qualitative description was used. 20 older adults took part in semi-structured interviews. Data were analyzed using conventional content analysis. Results Six themes emerged - Maintaining Normalcy, We Want to be Involved, Well-Equipped, Seizure Freedom, Fitting Epilepsy in with Other Conditions, Incongruence with Provider Goals. Conclusion These results add to the extant literature, and provide knowledge on which patient-centered epilepsy self-management interventions can be developed. In addition, these results can inform the development of a patient-centered outcome measure for older adults with epilepsy. Such a measure could be used in conjunction with existing measures related to disease status (seizure frequency, etc.) to ensure that outcomes pertinent to both patients and providers are targeted and measured.
AB - Purpose Older adults have the highest incidence of new-onset epilepsy, yet there is a lack of self-management interventions to ensure that this population achieves desirable outcomes. In order to develop patient-centered interventions for older adults with epilepsy, self-management outcomes of importance to these patients must first be explored. The purpose of this study was to describe what outcomes older adults diagnosed with epilepsy late in life hope to achieve in self-managing their condition. Method Qualitative description was used. 20 older adults took part in semi-structured interviews. Data were analyzed using conventional content analysis. Results Six themes emerged - Maintaining Normalcy, We Want to be Involved, Well-Equipped, Seizure Freedom, Fitting Epilepsy in with Other Conditions, Incongruence with Provider Goals. Conclusion These results add to the extant literature, and provide knowledge on which patient-centered epilepsy self-management interventions can be developed. In addition, these results can inform the development of a patient-centered outcome measure for older adults with epilepsy. Such a measure could be used in conjunction with existing measures related to disease status (seizure frequency, etc.) to ensure that outcomes pertinent to both patients and providers are targeted and measured.
KW - Older adults
KW - Patient-centered outcomes
KW - Qualitative research
KW - Self-management
UR - http://www.scopus.com/inward/record.url?scp=84906307057&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84906307057&partnerID=8YFLogxK
U2 - 10.1016/j.seizure.2014.04.010
DO - 10.1016/j.seizure.2014.04.010
M3 - Article
C2 - 24838071
AN - SCOPUS:84906307057
VL - 23
SP - 592
EP - 597
JO - Seizure : the journal of the British Epilepsy Association
JF - Seizure : the journal of the British Epilepsy Association
SN - 1059-1311
IS - 8
ER -