Patient-centered outcomes in older adults with epilepsy

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

Purpose Older adults have the highest incidence of new-onset epilepsy, yet there is a lack of self-management interventions to ensure that this population achieves desirable outcomes. In order to develop patient-centered interventions for older adults with epilepsy, self-management outcomes of importance to these patients must first be explored. The purpose of this study was to describe what outcomes older adults diagnosed with epilepsy late in life hope to achieve in self-managing their condition. Method Qualitative description was used. 20 older adults took part in semi-structured interviews. Data were analyzed using conventional content analysis. Results Six themes emerged - Maintaining Normalcy, We Want to be Involved, Well-Equipped, Seizure Freedom, Fitting Epilepsy in with Other Conditions, Incongruence with Provider Goals. Conclusion These results add to the extant literature, and provide knowledge on which patient-centered epilepsy self-management interventions can be developed. In addition, these results can inform the development of a patient-centered outcome measure for older adults with epilepsy. Such a measure could be used in conjunction with existing measures related to disease status (seizure frequency, etc.) to ensure that outcomes pertinent to both patients and providers are targeted and measured.

Original languageEnglish
Pages (from-to)592-597
Number of pages6
JournalSeizure
Volume23
Issue number8
DOIs
StatePublished - 2014

Fingerprint

Epilepsy
Self Care
Seizures
Outcome Assessment (Health Care)
Interviews
Incidence
Population

Keywords

  • Older adults
  • Patient-centered outcomes
  • Qualitative research
  • Self-management

ASJC Scopus subject areas

  • Clinical Neurology
  • Neurology
  • Medicine(all)

Cite this

Patient-centered outcomes in older adults with epilepsy. / Miller, Wendy.

In: Seizure, Vol. 23, No. 8, 2014, p. 592-597.

Research output: Contribution to journalArticle

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