Patient participation in research in the managed care environment: Key perceptions of members in an HMO

Sarah Purdy, Jonathan A. Finkelstein, Robert Fletcher, Cindy Christiansen, Thomas S. Inui

Research output: Contribution to journalArticle

14 Scopus citations


This study's objective was to elicit the views of research among enrollees in an HMO. A questionnaire was mailed to 207 adult enrollees, 55% had been exposed to research and 45% had not. Ninety-four percent of respondents supported research within the HMO, and 87% thought using information from medical records for research was acceptable. Sixty-three percent thought participation in research increased patient understanding of health care. Significantly more prior research participants thought that participation in research improves care. More patients would participate if written information were provided (67%), if feedback of results was provided (72%), and if their clinician invited them (67%). Only a modest percentage (20%) of patients would participate in a randomized trial.

Original languageEnglish (US)
Pages (from-to)492-495
Number of pages4
JournalJournal of general internal medicine
Issue number7
StatePublished - Sep 2 2000
Externally publishedYes



  • Managed care
  • Patient participation
  • Research

ASJC Scopus subject areas

  • Internal Medicine

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