Patient Preferences in Controlling Access to Their Electronic Health Records: a Prospective Cohort Study in Primary Care

Peter Schwartz, Kelly Caine, Sheri A. Alpert, Eric M. Meslin, Aaron Carroll, William M. Tierney

Research output: Contribution to journalArticle

21 Citations (Scopus)

Abstract

Introduction: Previous studies have measured individuals’ willingness to share personal information stored in electronic health records (EHRs) with health care providers, but none has measured preferences among patients when they are allowed to determine the parameters of provider access.

Methods: Patients were given the ability to control access by doctors, nurses, and other staff in a primary care clinic to personal information stored in an EHR. Patients could restrict access to all personal data or to specific types of sensitive information, and could restrict access for a specific time period. Patients also completed a survey regarding their understanding of and opinions regarding the process.

Results: Of 139 eligible patients who were approached, 105 (75.5 %) were enrolled, and preferences were collected from all 105 (100 %). Sixty patients (57 %) did not restrict access for any providers. Of the 45 patients (43 %) who chose to limit the access of at least one provider, 36 restricted access only to all personal information in the EHR, while nine restricted access of some providers to a subset of the their personal information. Thirty-four (32.3 %) patients blocked access to all personal information by all doctors, nurses, and/or other staff, 26 (24.8 %) blocked access by all doctors and/or nurses, and five (4.8 %) denied access to all doctors, nurses, and staff.

Conclusions: A significant minority of patients chose to restrict access by their primary care providers to personal information contained in an EHR, and few chose to restrict access to specific types of information. More research is needed to identify patient goals and understanding of the implications when facing decisions of this sort, and to identify the impact of patient education regarding information contained in EHRs and their use in the clinical care setting.

Original languageEnglish
Pages (from-to)25-30
Number of pages6
JournalJournal of General Internal Medicine
Volume30
Issue number1
DOIs
StatePublished - 2014

Fingerprint

Patient Preference
Electronic Health Records
Primary Health Care
Cohort Studies
Prospective Studies
Nurses
Access to Information
Patient Education
Health Personnel

Keywords

  • Electronic health records
  • Fair information practices
  • Patient preferences

ASJC Scopus subject areas

  • Internal Medicine

Cite this

Patient Preferences in Controlling Access to Their Electronic Health Records : a Prospective Cohort Study in Primary Care. / Schwartz, Peter; Caine, Kelly; Alpert, Sheri A.; Meslin, Eric M.; Carroll, Aaron; Tierney, William M.

In: Journal of General Internal Medicine, Vol. 30, No. 1, 2014, p. 25-30.

Research output: Contribution to journalArticle

@article{e09807f9a60d415e96a891d35e6355bf,
title = "Patient Preferences in Controlling Access to Their Electronic Health Records: a Prospective Cohort Study in Primary Care",
abstract = "Introduction: Previous studies have measured individuals’ willingness to share personal information stored in electronic health records (EHRs) with health care providers, but none has measured preferences among patients when they are allowed to determine the parameters of provider access.Methods: Patients were given the ability to control access by doctors, nurses, and other staff in a primary care clinic to personal information stored in an EHR. Patients could restrict access to all personal data or to specific types of sensitive information, and could restrict access for a specific time period. Patients also completed a survey regarding their understanding of and opinions regarding the process.Results: Of 139 eligible patients who were approached, 105 (75.5 {\%}) were enrolled, and preferences were collected from all 105 (100 {\%}). Sixty patients (57 {\%}) did not restrict access for any providers. Of the 45 patients (43 {\%}) who chose to limit the access of at least one provider, 36 restricted access only to all personal information in the EHR, while nine restricted access of some providers to a subset of the their personal information. Thirty-four (32.3 {\%}) patients blocked access to all personal information by all doctors, nurses, and/or other staff, 26 (24.8 {\%}) blocked access by all doctors and/or nurses, and five (4.8 {\%}) denied access to all doctors, nurses, and staff.Conclusions: A significant minority of patients chose to restrict access by their primary care providers to personal information contained in an EHR, and few chose to restrict access to specific types of information. More research is needed to identify patient goals and understanding of the implications when facing decisions of this sort, and to identify the impact of patient education regarding information contained in EHRs and their use in the clinical care setting.",
keywords = "Electronic health records, Fair information practices, Patient preferences",
author = "Peter Schwartz and Kelly Caine and Alpert, {Sheri A.} and Meslin, {Eric M.} and Aaron Carroll and Tierney, {William M.}",
year = "2014",
doi = "10.1007/s11606-014-3054-z",
language = "English",
volume = "30",
pages = "25--30",
journal = "Journal of General Internal Medicine",
issn = "0884-8734",
publisher = "Springer New York",
number = "1",

}

TY - JOUR

T1 - Patient Preferences in Controlling Access to Their Electronic Health Records

T2 - a Prospective Cohort Study in Primary Care

AU - Schwartz, Peter

AU - Caine, Kelly

AU - Alpert, Sheri A.

AU - Meslin, Eric M.

AU - Carroll, Aaron

AU - Tierney, William M.

PY - 2014

Y1 - 2014

N2 - Introduction: Previous studies have measured individuals’ willingness to share personal information stored in electronic health records (EHRs) with health care providers, but none has measured preferences among patients when they are allowed to determine the parameters of provider access.Methods: Patients were given the ability to control access by doctors, nurses, and other staff in a primary care clinic to personal information stored in an EHR. Patients could restrict access to all personal data or to specific types of sensitive information, and could restrict access for a specific time period. Patients also completed a survey regarding their understanding of and opinions regarding the process.Results: Of 139 eligible patients who were approached, 105 (75.5 %) were enrolled, and preferences were collected from all 105 (100 %). Sixty patients (57 %) did not restrict access for any providers. Of the 45 patients (43 %) who chose to limit the access of at least one provider, 36 restricted access only to all personal information in the EHR, while nine restricted access of some providers to a subset of the their personal information. Thirty-four (32.3 %) patients blocked access to all personal information by all doctors, nurses, and/or other staff, 26 (24.8 %) blocked access by all doctors and/or nurses, and five (4.8 %) denied access to all doctors, nurses, and staff.Conclusions: A significant minority of patients chose to restrict access by their primary care providers to personal information contained in an EHR, and few chose to restrict access to specific types of information. More research is needed to identify patient goals and understanding of the implications when facing decisions of this sort, and to identify the impact of patient education regarding information contained in EHRs and their use in the clinical care setting.

AB - Introduction: Previous studies have measured individuals’ willingness to share personal information stored in electronic health records (EHRs) with health care providers, but none has measured preferences among patients when they are allowed to determine the parameters of provider access.Methods: Patients were given the ability to control access by doctors, nurses, and other staff in a primary care clinic to personal information stored in an EHR. Patients could restrict access to all personal data or to specific types of sensitive information, and could restrict access for a specific time period. Patients also completed a survey regarding their understanding of and opinions regarding the process.Results: Of 139 eligible patients who were approached, 105 (75.5 %) were enrolled, and preferences were collected from all 105 (100 %). Sixty patients (57 %) did not restrict access for any providers. Of the 45 patients (43 %) who chose to limit the access of at least one provider, 36 restricted access only to all personal information in the EHR, while nine restricted access of some providers to a subset of the their personal information. Thirty-four (32.3 %) patients blocked access to all personal information by all doctors, nurses, and/or other staff, 26 (24.8 %) blocked access by all doctors and/or nurses, and five (4.8 %) denied access to all doctors, nurses, and staff.Conclusions: A significant minority of patients chose to restrict access by their primary care providers to personal information contained in an EHR, and few chose to restrict access to specific types of information. More research is needed to identify patient goals and understanding of the implications when facing decisions of this sort, and to identify the impact of patient education regarding information contained in EHRs and their use in the clinical care setting.

KW - Electronic health records

KW - Fair information practices

KW - Patient preferences

UR - http://www.scopus.com/inward/record.url?scp=84925496854&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84925496854&partnerID=8YFLogxK

U2 - 10.1007/s11606-014-3054-z

DO - 10.1007/s11606-014-3054-z

M3 - Article

C2 - 25480721

AN - SCOPUS:84925496854

VL - 30

SP - 25

EP - 30

JO - Journal of General Internal Medicine

JF - Journal of General Internal Medicine

SN - 0884-8734

IS - 1

ER -