Predictive testing for HD

maximizing patient autonomy.

Kimberly A. Quaid

Research output: Contribution to journalArticle

7 Citations (Scopus)

Abstract

In "The Ethical Justification for Minimal Paternalism in the Use of the Predictive Test for Huntington's Disease," David DeGrazia attempts to provide a rational analysis of the exclusion criteria and counseling requirements for predictive testing proposed by the Huntington's Disease Society of America (HDSA). The need for analysis is clear. These protocols and procedures for predictive testing for Huntington's disease (HD) are being used as models for testing programs for any number of genetic conditions. DeGrazia concludes that the HDSA guidelines are reasonable, a conclusion with which I agree. However, I believe that DeGrazia, by placing his analysis within the framework of autonomy versus paternalism, overlooks both the fundamental rationale for the testing procedures and the true barriers to testing....The difficulties encountered during the testing process clearly demonstrated the failure of abstract principles to deal with real life.

Original languageEnglish
Pages (from-to)238-240
Number of pages3
JournalThe Journal of clinical ethics
Volume2
Issue number4
StatePublished - Dec 1991
Externally publishedYes

Fingerprint

Huntington Disease
autonomy
Paternalism
Disease
paternalism
testing procedure
Counseling
counseling
exclusion
Guidelines
Society

ASJC Scopus subject areas

  • Social Sciences (miscellaneous)

Cite this

Predictive testing for HD : maximizing patient autonomy. / Quaid, Kimberly A.

In: The Journal of clinical ethics, Vol. 2, No. 4, 12.1991, p. 238-240.

Research output: Contribution to journalArticle

Quaid, Kimberly A. / Predictive testing for HD : maximizing patient autonomy. In: The Journal of clinical ethics. 1991 ; Vol. 2, No. 4. pp. 238-240.
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