Project HealthDesign: Enhancing action through information

Patricia Flatley Brennan, Gail Casper, Stephen Downs, Veenu Aulahk

Research output: Chapter in Book/Report/Conference proceedingConference contribution

10 Scopus citations

Abstract

Project HealthDesign is a country-wide initiative in the United States designed to stimulate innovation in personal health records (PHRs). Nine grantee teams engaged in an 18-month long design and prototyping process. Two teams addressed the needs of children and adolescents; three created novel approaches to help adults prevent or manage metabolic syndrome; three groups employed interface innovations to assist patients with chronic care management and one team devised a novel calendaring system to assist patients undergoing complex medical/surgical treatments to integrate care processes into their daily lives. These projects not only included development and testing of novel personal health records applications, but also served as the starting point to specify and implement a common technical core platform. The project advanced PHR development in two key ways: intensive user-centered design and a development architecture that separates applications of PHRs from the infrastructure that supports them. The initiative also allowed systematic investigation of significant ethical, legal and social issues, including how privacy considerations are changed when information technology innovations are used in the home and the rebalancing of the authority structure of health care decision making when patient-centered approaches guide the design of PHRs.

Original languageEnglish (US)
Title of host publicationConnecting Health and Humans - Proceedings of NI2009
Subtitle of host publicationThe 10th International Congress on Nursing Informatics
PublisherIOS Press
Pages214-218
Number of pages5
ISBN (Print)9781607500247
DOIs
StatePublished - Jan 1 2009
Externally publishedYes
Event10th International Congress on Nursing Informatics: Connecting Health and Humans, NI2009 - Helsinki, Finland
Duration: Jun 28 2009Jul 1 2009

Publication series

NameStudies in Health Technology and Informatics
Volume146
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Other

Other10th International Congress on Nursing Informatics: Connecting Health and Humans, NI2009
CountryFinland
CityHelsinki
Period6/28/097/1/09

Keywords

  • Infrastructure
  • Personal health records
  • User-centered design

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

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    Brennan, P. F., Casper, G., Downs, S., & Aulahk, V. (2009). Project HealthDesign: Enhancing action through information. In Connecting Health and Humans - Proceedings of NI2009: The 10th International Congress on Nursing Informatics (pp. 214-218). (Studies in Health Technology and Informatics; Vol. 146). IOS Press. https://doi.org/10.3233/978-1-60750-024-7-214