Quality Items Required for Running a Paediatric Inflammatory Bowel Disease Centre

An ECCO Paper

ImproveCareNow Network

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Background: The importance of a holistic approach with a comprehensive multidisciplinary team, including nutritional and psychosocial support, is becoming well recognised as a key contributor to optimal care in paediatric inflammatory bowel disease [IBD]. The Paediatric committee of ECCO [P-ECCO] aimed to determine important components that would contribute to quality of care in a paediatric IBD centre [henceforth 'quality items'].

Methods: First, a list of items has been generated by a Delphi group of 111 international paediatric IBD experts. Through an iterative process, the group graded and ranked the items according to their perceived relative contribution to quality care. We then surveyed 101 paediatric IBD centres affiliated with the Porto and Interest groups of ESPGHAN in Europe and with the ImproveCareNow registry in North America, exploring the availability of the retained items in their centres.

Results: A total of 68 items were generated and reduced to a list of 60 ranked order items, grouped in six domains: Facility, Personnel, Management, Supportive Services, Patient Support and Accessibility, and Academia and Communications. Of the retained items, 52 [88%] were present in most of the 101 high-performing paediatric IBD centres, and there was a trend for increased availability with increased patient volume at the centres.

Conclusion: In this P-ECCO study, we attempted to tabulate, for the first time in paediatrics, 60 quality items that paediatric IBD referral centres may wish to include.

Original languageEnglish (US)
Pages (from-to)981-987
Number of pages7
JournalJournal of Crohn's & colitis
Volume11
Issue number8
DOIs
StatePublished - Aug 1 2017

Fingerprint

Inflammatory Bowel Diseases
Pediatrics
Quality of Health Care
Personnel Management
Public Opinion
Nutritional Support
North America
Registries
Referral and Consultation
Communication

ASJC Scopus subject areas

  • Gastroenterology

Cite this

Quality Items Required for Running a Paediatric Inflammatory Bowel Disease Centre : An ECCO Paper. / ImproveCareNow Network.

In: Journal of Crohn's & colitis, Vol. 11, No. 8, 01.08.2017, p. 981-987.

Research output: Contribution to journalArticle

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abstract = "Background: The importance of a holistic approach with a comprehensive multidisciplinary team, including nutritional and psychosocial support, is becoming well recognised as a key contributor to optimal care in paediatric inflammatory bowel disease [IBD]. The Paediatric committee of ECCO [P-ECCO] aimed to determine important components that would contribute to quality of care in a paediatric IBD centre [henceforth 'quality items'].Methods: First, a list of items has been generated by a Delphi group of 111 international paediatric IBD experts. Through an iterative process, the group graded and ranked the items according to their perceived relative contribution to quality care. We then surveyed 101 paediatric IBD centres affiliated with the Porto and Interest groups of ESPGHAN in Europe and with the ImproveCareNow registry in North America, exploring the availability of the retained items in their centres.Results: A total of 68 items were generated and reduced to a list of 60 ranked order items, grouped in six domains: Facility, Personnel, Management, Supportive Services, Patient Support and Accessibility, and Academia and Communications. Of the retained items, 52 [88{\%}] were present in most of the 101 high-performing paediatric IBD centres, and there was a trend for increased availability with increased patient volume at the centres.Conclusion: In this P-ECCO study, we attempted to tabulate, for the first time in paediatrics, 60 quality items that paediatric IBD referral centres may wish to include.",
author = "{ImproveCareNow Network} and Dan Turner and Adam Carle and Steven Steiner and Margolis, {Peter A.} and Colletti, {Richard B.} and Russell, {Richard K.} and Arie Levine and Kolho, {Kaija Leena} and Ruemmele, {Frank M.}",
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