The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale: development and validation

Rebecca N. Adams, Catherine E. Mosher, Kevin L. Rand, Adam T. Hirsh, Patrick O. Monahan, Rafat Abonour, Kurt Kroenke

Research output: Contribution to journalArticle

4 Scopus citations

Abstract

Purpose: Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer. Methods: First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients. Results: The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures. Conclusions: The resulting measures have both clinical and research utility.

Original languageEnglish (US)
Pages (from-to)1901-1913
Number of pages13
JournalQuality of Life Research
Volume26
Issue number7
DOIs
StatePublished - Jul 1 2017

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Keywords

  • Cancer
  • Loneliness
  • Measurement
  • Oncology
  • Scale development
  • Social expectations

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

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