The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale

development and validation

Rebecca N. Adams, Catherine E. Mosher, Kevin L. Rand, Adam T. Hirsh, Patrick Monahan, Rafat Abonour, Kurt Kroenke

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

Purpose: Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer. Methods: First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients. Results: The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures. Conclusions: The resulting measures have both clinical and research utility.

Original languageEnglish (US)
Pages (from-to)1-13
Number of pages13
JournalQuality of Life Research
DOIs
StateAccepted/In press - Feb 24 2017

Fingerprint

Loneliness
Neoplasms
Research
Psychometrics
Reproducibility of Results
Mental Health
Emotions
Quality of Life

Keywords

  • Cancer
  • Loneliness
  • Measurement
  • Oncology
  • Scale development
  • Social expectations

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health

Cite this

The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale : development and validation. / Adams, Rebecca N.; Mosher, Catherine E.; Rand, Kevin L.; Hirsh, Adam T.; Monahan, Patrick; Abonour, Rafat; Kroenke, Kurt.

In: Quality of Life Research, 24.02.2017, p. 1-13.

Research output: Contribution to journalArticle

@article{5186918f89024d0ca1de0212c3381921,
title = "The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale: development and validation",
abstract = "Purpose: Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer. Methods: First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients. Results: The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures. Conclusions: The resulting measures have both clinical and research utility.",
keywords = "Cancer, Loneliness, Measurement, Oncology, Scale development, Social expectations",
author = "Adams, {Rebecca N.} and Mosher, {Catherine E.} and Rand, {Kevin L.} and Hirsh, {Adam T.} and Patrick Monahan and Rafat Abonour and Kurt Kroenke",
year = "2017",
month = "2",
day = "24",
doi = "10.1007/s11136-017-1518-4",
language = "English (US)",
pages = "1--13",
journal = "Quality of Life Research",
issn = "0962-9343",
publisher = "Springer Netherlands",

}

TY - JOUR

T1 - The Cancer Loneliness Scale and Cancer-related Negative Social Expectations Scale

T2 - development and validation

AU - Adams, Rebecca N.

AU - Mosher, Catherine E.

AU - Rand, Kevin L.

AU - Hirsh, Adam T.

AU - Monahan, Patrick

AU - Abonour, Rafat

AU - Kroenke, Kurt

PY - 2017/2/24

Y1 - 2017/2/24

N2 - Purpose: Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer. Methods: First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients. Results: The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures. Conclusions: The resulting measures have both clinical and research utility.

AB - Purpose: Loneliness is a known risk factor for poor mental and physical health outcomes and quality of life in the general population, and preliminary research suggests that loneliness is linked to poorer health outcomes in cancer patients as well. Various aspects of the cancer experience contribute to patients feeling alone and misunderstood. Furthermore, loneliness theory suggests that negative social expectations, which may specifically relate to the cancer experience, precipitate and sustain loneliness. Cancer-specific tools are needed to assess key constructs of this theory. In the current study, we developed and tested measures of (1) loneliness attributed to cancer (i.e., cancer-related loneliness) and (2) negative social expectations related to cancer. Methods: First, we developed the items for the measures based on theory, prior research, and expert feedback. Next, we assessed the measures’ psychometric properties (i.e., internal consistency and construct validity) in a diverse sample of cancer patients. Results: The final products included a 7-item unidimensional Cancer Loneliness Scale and a 5-item unidimensional Cancer-related Negative Social Expectations Scale. Evidence of excellent reliability and validity was found for both measures. Conclusions: The resulting measures have both clinical and research utility.

KW - Cancer

KW - Loneliness

KW - Measurement

KW - Oncology

KW - Scale development

KW - Social expectations

UR - http://www.scopus.com/inward/record.url?scp=85013841988&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85013841988&partnerID=8YFLogxK

U2 - 10.1007/s11136-017-1518-4

DO - 10.1007/s11136-017-1518-4

M3 - Article

SP - 1

EP - 13

JO - Quality of Life Research

JF - Quality of Life Research

SN - 0962-9343

ER -