The Seizures and Epilepsy Education (SEE) Program for families of children with epilepsy: A preliminary study

Cheryl P. Shore, Susan Perkins, Joan K. Austin

Research output: Contribution to journalArticle

41 Citations (Scopus)

Abstract

We investigated the usefulness of the Seizures and Epilepsy Education (SEE) program in improving quality of life, management of the seizure condition, and health care utilization in families having a child with epilepsy. Members of 15 families attended the program, with at least one parent from each family represented. Children attended if they were at least 12 years of age. Participants completed research instruments prior to attending the SEE program, and also 1 and 6 months after attendance. Both parents and children reported improvement in quality of life relating to child mental health after attending the SEE program. Parents reported reduced emotional impact of the child's condition, fewer worries, and greater knowledge related to epilepsy. Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design.

Original languageEnglish
Pages (from-to)157-164
Number of pages8
JournalEpilepsy and Behavior
Volume12
Issue number1
DOIs
StatePublished - Jan 2008

Fingerprint

Epilepsy
Seizures
Education
Parents
Patient Acceptance of Health Care
Single-Parent Family
Quality of Life
Mental Health
Research Design
Research

Keywords

  • Child
  • Education
  • Family
  • Intervention
  • Psychosocial

ASJC Scopus subject areas

  • Clinical Neurology
  • Behavioral Neuroscience
  • Neurology

Cite this

The Seizures and Epilepsy Education (SEE) Program for families of children with epilepsy : A preliminary study. / Shore, Cheryl P.; Perkins, Susan; Austin, Joan K.

In: Epilepsy and Behavior, Vol. 12, No. 1, 01.2008, p. 157-164.

Research output: Contribution to journalArticle

@article{febbe9ccacca45c68b48de0857d6ceb7,
title = "The Seizures and Epilepsy Education (SEE) Program for families of children with epilepsy: A preliminary study",
abstract = "We investigated the usefulness of the Seizures and Epilepsy Education (SEE) program in improving quality of life, management of the seizure condition, and health care utilization in families having a child with epilepsy. Members of 15 families attended the program, with at least one parent from each family represented. Children attended if they were at least 12 years of age. Participants completed research instruments prior to attending the SEE program, and also 1 and 6 months after attendance. Both parents and children reported improvement in quality of life relating to child mental health after attending the SEE program. Parents reported reduced emotional impact of the child's condition, fewer worries, and greater knowledge related to epilepsy. Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design.",
keywords = "Child, Education, Family, Intervention, Psychosocial",
author = "Shore, {Cheryl P.} and Susan Perkins and Austin, {Joan K.}",
year = "2008",
month = "1",
doi = "10.1016/j.yebeh.2007.10.001",
language = "English",
volume = "12",
pages = "157--164",
journal = "Epilepsy and Behavior",
issn = "1525-5050",
publisher = "Academic Press Inc.",
number = "1",

}

TY - JOUR

T1 - The Seizures and Epilepsy Education (SEE) Program for families of children with epilepsy

T2 - A preliminary study

AU - Shore, Cheryl P.

AU - Perkins, Susan

AU - Austin, Joan K.

PY - 2008/1

Y1 - 2008/1

N2 - We investigated the usefulness of the Seizures and Epilepsy Education (SEE) program in improving quality of life, management of the seizure condition, and health care utilization in families having a child with epilepsy. Members of 15 families attended the program, with at least one parent from each family represented. Children attended if they were at least 12 years of age. Participants completed research instruments prior to attending the SEE program, and also 1 and 6 months after attendance. Both parents and children reported improvement in quality of life relating to child mental health after attending the SEE program. Parents reported reduced emotional impact of the child's condition, fewer worries, and greater knowledge related to epilepsy. Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design.

AB - We investigated the usefulness of the Seizures and Epilepsy Education (SEE) program in improving quality of life, management of the seizure condition, and health care utilization in families having a child with epilepsy. Members of 15 families attended the program, with at least one parent from each family represented. Children attended if they were at least 12 years of age. Participants completed research instruments prior to attending the SEE program, and also 1 and 6 months after attendance. Both parents and children reported improvement in quality of life relating to child mental health after attending the SEE program. Parents reported reduced emotional impact of the child's condition, fewer worries, and greater knowledge related to epilepsy. Results suggest that attending the SEE program may be beneficial to families having a child with epilepsy; however, further study is needed with a more robust research design.

KW - Child

KW - Education

KW - Family

KW - Intervention

KW - Psychosocial

UR - http://www.scopus.com/inward/record.url?scp=37049035648&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=37049035648&partnerID=8YFLogxK

U2 - 10.1016/j.yebeh.2007.10.001

DO - 10.1016/j.yebeh.2007.10.001

M3 - Article

C2 - 18086460

AN - SCOPUS:37049035648

VL - 12

SP - 157

EP - 164

JO - Epilepsy and Behavior

JF - Epilepsy and Behavior

SN - 1525-5050

IS - 1

ER -