The vulnerabilities of orphaned children participating in research: A critical review and factors for consideration for participation In biomedical and behavioral research

Rachel T. Thompson, Eric M. Meslin, Paula K A Braitstein, Winstone M. Nyandiko, Samuel O. Ayaya, Rachel Vreeman

Research output: Contribution to journalArticle

Abstract

ORPHANS ARE A SUBPOPULATION WITH a unique set of additional vulnerabilities. Increasing focus on children's rights, pediatric global health, and pediatric research makes it imperative to recognize and address unique vulnerabilities of orphaned children. This paper describes the unique vulnerabilities of the orphaned pediatric population and offers a structured set of factors that require consideration when including orphans in biomedical research. Pediatric orphans are particularly vulnerable due to decreased economic resources, psychosocial instability, increased risk of abuse, and delayed/decreased access to healthcare. These vulnerabilities are significant. By carefully considering each issue in a population in a culturally specific and study-specific manner, researchers can make valuable contributions to the overall health and well-being of this uniquely vulnerable population.

Original languageEnglish
Pages (from-to)56-66
Number of pages11
JournalJournal of Empirical Research on Human Research Ethics
Volume7
Issue number4
DOIs
StatePublished - Oct 2012

Fingerprint

Behavioral research
Behavioral Research
behavioral research
Pediatrics
Orphaned Children
orphan
Biomedical Research
vulnerability
participation
Research
Health
children's rights
Vulnerable Populations
health
Population
abuse
well-being
Economics
Research Personnel
Delivery of Health Care

Keywords

  • HIV
  • Kenya
  • Orphan
  • Research
  • Vulnerability

ASJC Scopus subject areas

  • Education
  • Communication
  • Social Psychology
  • Law

Cite this

The vulnerabilities of orphaned children participating in research : A critical review and factors for consideration for participation In biomedical and behavioral research. / Thompson, Rachel T.; Meslin, Eric M.; Braitstein, Paula K A; Nyandiko, Winstone M.; Ayaya, Samuel O.; Vreeman, Rachel.

In: Journal of Empirical Research on Human Research Ethics, Vol. 7, No. 4, 10.2012, p. 56-66.

Research output: Contribution to journalArticle

Thompson, Rachel T. ; Meslin, Eric M. ; Braitstein, Paula K A ; Nyandiko, Winstone M. ; Ayaya, Samuel O. ; Vreeman, Rachel. / The vulnerabilities of orphaned children participating in research : A critical review and factors for consideration for participation In biomedical and behavioral research. In: Journal of Empirical Research on Human Research Ethics. 2012 ; Vol. 7, No. 4. pp. 56-66.
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