Two worlds: Adolescents' strategies for managing life with a parent in hospice

Denice Kopchak Sheehan, M. Murray Mayo, Grace H. Christ, Kim Heim, Stephanie Parish, Ghada Shahrour, Claire Draucker

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Objective:: This study aimed to generate an explanatory model of the coping strategies that adolescents employ to manage the stressors they experience in the final months of their ill parent's life and shortly after their death. Method:: The sample included 26 families of adolescents with a parent receiving care in a large hospice program in northeastern Ohio. A semistructured interview was conducted with 14 ill parents, 17 well parents/guardians, and 30 of their adolescent children before the parent's death and, additionally, with 6 of these families after the death. The interviews were audiotaped, transcribed verbatim, and analyzed using a grounded-theory approach. Results:: The participants described two worlds that constituted the lives of the adolescents: the well world of normal adolescence and the ill world of having a parent near the end of life. The adolescents experienced a common challenge of living in two worlds and responded to the challenge with a process we labeled “managing two worlds.” Five stages through which adolescents manage their worlds were identified: keeping the ill world and the well world separate; having the ill world intrude into the well world; moving between the ill world and the well world; being immersed in the ill world; and returning to the well world having been changed by the ill world. Significance of results:: The explanatory model of “managing two worlds” outlines a complex and nuanced process that changes over time. The model can be used by health professionals who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist families with strategies tailored to an adolescent's specific needs. Future research should investigate associations among the process of “managing two worlds” and outcomes related to adolescent bereavement.

Original languageEnglish (US)
JournalPalliative and Supportive Care
DOIs
StateAccepted/In press - Jul 1 2015

Fingerprint

Hospices
Parents
Interviews
Hospice Care
Bereavement

Keywords

  • Adolescents/youth
  • Advanced cancer
  • Hospice
  • Parental death
  • Qualitative research

ASJC Scopus subject areas

  • Medicine(all)
  • Psychiatry and Mental health
  • Clinical Psychology
  • Nursing(all)

Cite this

Two worlds : Adolescents' strategies for managing life with a parent in hospice. / Sheehan, Denice Kopchak; Mayo, M. Murray; Christ, Grace H.; Heim, Kim; Parish, Stephanie; Shahrour, Ghada; Draucker, Claire.

In: Palliative and Supportive Care, 01.07.2015.

Research output: Contribution to journalArticle

Sheehan, Denice Kopchak ; Mayo, M. Murray ; Christ, Grace H. ; Heim, Kim ; Parish, Stephanie ; Shahrour, Ghada ; Draucker, Claire. / Two worlds : Adolescents' strategies for managing life with a parent in hospice. In: Palliative and Supportive Care. 2015.
@article{26f84611760f4a91808b2c293d222749,
title = "Two worlds: Adolescents' strategies for managing life with a parent in hospice",
abstract = "Objective:: This study aimed to generate an explanatory model of the coping strategies that adolescents employ to manage the stressors they experience in the final months of their ill parent's life and shortly after their death. Method:: The sample included 26 families of adolescents with a parent receiving care in a large hospice program in northeastern Ohio. A semistructured interview was conducted with 14 ill parents, 17 well parents/guardians, and 30 of their adolescent children before the parent's death and, additionally, with 6 of these families after the death. The interviews were audiotaped, transcribed verbatim, and analyzed using a grounded-theory approach. Results:: The participants described two worlds that constituted the lives of the adolescents: the well world of normal adolescence and the ill world of having a parent near the end of life. The adolescents experienced a common challenge of living in two worlds and responded to the challenge with a process we labeled “managing two worlds.” Five stages through which adolescents manage their worlds were identified: keeping the ill world and the well world separate; having the ill world intrude into the well world; moving between the ill world and the well world; being immersed in the ill world; and returning to the well world having been changed by the ill world. Significance of results:: The explanatory model of “managing two worlds” outlines a complex and nuanced process that changes over time. The model can be used by health professionals who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist families with strategies tailored to an adolescent's specific needs. Future research should investigate associations among the process of “managing two worlds” and outcomes related to adolescent bereavement.",
keywords = "Adolescents/youth, Advanced cancer, Hospice, Parental death, Qualitative research",
author = "Sheehan, {Denice Kopchak} and Mayo, {M. Murray} and Christ, {Grace H.} and Kim Heim and Stephanie Parish and Ghada Shahrour and Claire Draucker",
year = "2015",
month = "7",
day = "1",
doi = "10.1017/S1478951515000735",
language = "English (US)",
journal = "Palliative and Supportive Care",
issn = "1478-9515",
publisher = "Cambridge University Press",

}

TY - JOUR

T1 - Two worlds

T2 - Adolescents' strategies for managing life with a parent in hospice

AU - Sheehan, Denice Kopchak

AU - Mayo, M. Murray

AU - Christ, Grace H.

AU - Heim, Kim

AU - Parish, Stephanie

AU - Shahrour, Ghada

AU - Draucker, Claire

PY - 2015/7/1

Y1 - 2015/7/1

N2 - Objective:: This study aimed to generate an explanatory model of the coping strategies that adolescents employ to manage the stressors they experience in the final months of their ill parent's life and shortly after their death. Method:: The sample included 26 families of adolescents with a parent receiving care in a large hospice program in northeastern Ohio. A semistructured interview was conducted with 14 ill parents, 17 well parents/guardians, and 30 of their adolescent children before the parent's death and, additionally, with 6 of these families after the death. The interviews were audiotaped, transcribed verbatim, and analyzed using a grounded-theory approach. Results:: The participants described two worlds that constituted the lives of the adolescents: the well world of normal adolescence and the ill world of having a parent near the end of life. The adolescents experienced a common challenge of living in two worlds and responded to the challenge with a process we labeled “managing two worlds.” Five stages through which adolescents manage their worlds were identified: keeping the ill world and the well world separate; having the ill world intrude into the well world; moving between the ill world and the well world; being immersed in the ill world; and returning to the well world having been changed by the ill world. Significance of results:: The explanatory model of “managing two worlds” outlines a complex and nuanced process that changes over time. The model can be used by health professionals who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist families with strategies tailored to an adolescent's specific needs. Future research should investigate associations among the process of “managing two worlds” and outcomes related to adolescent bereavement.

AB - Objective:: This study aimed to generate an explanatory model of the coping strategies that adolescents employ to manage the stressors they experience in the final months of their ill parent's life and shortly after their death. Method:: The sample included 26 families of adolescents with a parent receiving care in a large hospice program in northeastern Ohio. A semistructured interview was conducted with 14 ill parents, 17 well parents/guardians, and 30 of their adolescent children before the parent's death and, additionally, with 6 of these families after the death. The interviews were audiotaped, transcribed verbatim, and analyzed using a grounded-theory approach. Results:: The participants described two worlds that constituted the lives of the adolescents: the well world of normal adolescence and the ill world of having a parent near the end of life. The adolescents experienced a common challenge of living in two worlds and responded to the challenge with a process we labeled “managing two worlds.” Five stages through which adolescents manage their worlds were identified: keeping the ill world and the well world separate; having the ill world intrude into the well world; moving between the ill world and the well world; being immersed in the ill world; and returning to the well world having been changed by the ill world. Significance of results:: The explanatory model of “managing two worlds” outlines a complex and nuanced process that changes over time. The model can be used by health professionals who seek to help adolescents navigate this critical time when their parents are dying or have recently died. These results can also be used to inform the development of interventions that assist families with strategies tailored to an adolescent's specific needs. Future research should investigate associations among the process of “managing two worlds” and outcomes related to adolescent bereavement.

KW - Adolescents/youth

KW - Advanced cancer

KW - Hospice

KW - Parental death

KW - Qualitative research

UR - http://www.scopus.com/inward/record.url?scp=84934343464&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84934343464&partnerID=8YFLogxK

U2 - 10.1017/S1478951515000735

DO - 10.1017/S1478951515000735

M3 - Article

C2 - 26126748

AN - SCOPUS:84934343464

JO - Palliative and Supportive Care

JF - Palliative and Supportive Care

SN - 1478-9515

ER -