Uncertainty in adolescents and young adults with cancer

Carol L. Decker, Joan Haase, Cynthia J. Bell

Research output: Contribution to journalArticle

30 Citations (Scopus)

Abstract

Purpose/Objectives: To describe uncertainty in three groups of adolescents and young adults with cancer at specific times in their cancer experience: newly diagnosed, diagnosed one to four years, and diagnosed five or more years. Design: Descriptive, cross-sectional, comparative. Setting: Six pediatric oncology centers in North America. Sample: 193 adolescents and young adult cancer survivors aged 11-22 years, able to read English, with no central nervous system disease. Methods: A booklet of questionnaires was completed during a clinic visit or hospitalization. Uncertainty was measured using Mishel's Uncertainty in Illness Scale. Main Research Variables: Uncertainty and time since diagnosis. Findings: No significant differences were found in the overall level of uncertainty among the three time-since-diagnosis groups; however, analysis of variance on individual items detected significant group differences for 8 of the 33 items. Newly diagnosed survivors had significantly higher uncertainty for future pain, the unpredictable illness course, staff responsibilities, and concerns about when they would be able to care for themselves. Survivors five or more years from diagnosis had significantly higher uncertainty related to knowing what was wrong, and they had more unanswered questions and higher uncertainty compared to the two other groups about the probability of successful treatment. All of the survivors had high uncertainty about the multiple meanings of communication from doctors. Conclusions: The overall level of uncertainty remained unchanged across the survivorship continuum, but differences existed in specific concerns. Implications for Nursing: Uncertainty is important to consider far beyond the treatment period, particularly assessment of information needs and acknowledgment of inherent uncertainty throughout cancer survivorship.

Original languageEnglish
Pages (from-to)681-688
Number of pages8
JournalOncology Nursing Forum
Volume34
Issue number3
DOIs
StatePublished - May 2007

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Uncertainty
Young Adult
Neoplasms
Survivors
Survival Rate
Pamphlets
Needs Assessment
Central Nervous System Diseases
Ambulatory Care
North America
Analysis of Variance
Hospitalization
Nursing
Communication
Pediatrics
Pain

ASJC Scopus subject areas

  • Oncology(nursing)

Cite this

Uncertainty in adolescents and young adults with cancer. / Decker, Carol L.; Haase, Joan; Bell, Cynthia J.

In: Oncology Nursing Forum, Vol. 34, No. 3, 05.2007, p. 681-688.

Research output: Contribution to journalArticle

Decker, Carol L. ; Haase, Joan ; Bell, Cynthia J. / Uncertainty in adolescents and young adults with cancer. In: Oncology Nursing Forum. 2007 ; Vol. 34, No. 3. pp. 681-688.
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