Unfinished business: Inadequate health coverage for privately insured seriously ill children

Nancy Swigonski, Eleanor D. Kinney, Deborah A. Freund, Thomas J. Kniesner

Research output: Contribution to journalArticle

1 Scopus citations


During the 1980s and the 1990s there were great increases in health insurance coverage for poor children through the Children's Health Insurance Program (CHIP) and extended Medicaid eligibility. Problems remain for the small number of children with serious medical conditions whose care is a high proportion of total health care expenditures on children. We report on the adequacy of health insurance coverage for a sample of children with serious and rare illnesses treated at the single tertiary care pediatric hospital in Indiana. One third of privately insured children in our data had inadequate insurance. Compared to families with inadequate health insurance, families with inadequate insurance were 50% less likely to delay care for themselves and 67% less likely to delay care for a child. Our research identifies policy-relevant deficiencies in private health coverage for seriously ill children ineligible for either Medicaid or CHIP.

Original languageEnglish (US)
Pages (from-to)219-236
Number of pages18
JournalChildren's Health Care
Issue number3
StatePublished - 2001

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health
  • Developmental and Educational Psychology
  • Clinical Psychology

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