Using Patient Perspectives to Inform the Development of a Behavioral Intervention for Chronic Pain in Patients with HIV: A Qualitative Study

Jessica S. Merlin, Sarah R. Young, Mallory O. Johnson, Michael Saag, William Demonte, Riddhi Modi, Sally Shurbaji, William A. Anderson, Robert Kerns, Matthew Bair, Stefan Kertesz, Susan Davies, Janet M. Turan

Research output: Contribution to journalArticle

5 Citations (Scopus)

Abstract

Background: Chronic pain is a common and disabling comorbidity in individuals living with HIV. Behavioral interventions are among the most effective and safe nonpharmacologic treatments for chronic pain. However, the success of a behavioral intervention is influenced by how well it is tailored to the target population's biological, psychological, and social context. Given well-documented psychosocial vulnerabilities among persons with HIV, it is critical to develop a behavioral intervention for chronic pain tailored to this population.

Objective: To use qualitative methods to investigate patient preferences for the structure and delivery of a behavioral intervention for chronic pain in individuals with HIV.

Methods: Interviews and focus groups were used to elicit participant preferences. A thematic analysis approach, with an initial round of open coding, was used to develop the codebook and analyze the data.

Results: Qualitative data from 12 interviews and 3 focus groups with patients living with HIV and chronic pain (total N = 24) were analyzed. Emergent themes fell into four major categories: perceived value of group sessions, incorporating peer leadership, and two key elements of how the intervention should be delivered: the HIV status of group participants and views on phone-delivered intervention content.

Discussion: This study provides a framework for the structure and delivery of a behavioral intervention for chronic pain in individuals with HIV based on patient preferences. We will use these results to design our intervention, and hope that our approach informs the work of investigators in other disciplines who seek to incorporate patient preferences during intervention development.

Original languageEnglish (US)
Pages (from-to)879-888
Number of pages10
JournalPain medicine (Malden, Mass.)
Volume18
Issue number5
DOIs
StatePublished - May 1 2017

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Chronic Pain
HIV
Patient Preference
Focus Groups
Hope
Interviews
Health Services Needs and Demand
Comorbidity
Research Personnel
Psychology
Population

Keywords

  • Chronic Pain
  • Group Interventions
  • HIV
  • Patient Preferences
  • Peer Interventions

ASJC Scopus subject areas

  • Clinical Neurology
  • Anesthesiology and Pain Medicine

Cite this

Using Patient Perspectives to Inform the Development of a Behavioral Intervention for Chronic Pain in Patients with HIV : A Qualitative Study. / Merlin, Jessica S.; Young, Sarah R.; Johnson, Mallory O.; Saag, Michael; Demonte, William; Modi, Riddhi; Shurbaji, Sally; Anderson, William A.; Kerns, Robert; Bair, Matthew; Kertesz, Stefan; Davies, Susan; Turan, Janet M.

In: Pain medicine (Malden, Mass.), Vol. 18, No. 5, 01.05.2017, p. 879-888.

Research output: Contribution to journalArticle

Merlin, JS, Young, SR, Johnson, MO, Saag, M, Demonte, W, Modi, R, Shurbaji, S, Anderson, WA, Kerns, R, Bair, M, Kertesz, S, Davies, S & Turan, JM 2017, 'Using Patient Perspectives to Inform the Development of a Behavioral Intervention for Chronic Pain in Patients with HIV: A Qualitative Study', Pain medicine (Malden, Mass.), vol. 18, no. 5, pp. 879-888. https://doi.org/10.1093/pm/pnw150
Merlin, Jessica S. ; Young, Sarah R. ; Johnson, Mallory O. ; Saag, Michael ; Demonte, William ; Modi, Riddhi ; Shurbaji, Sally ; Anderson, William A. ; Kerns, Robert ; Bair, Matthew ; Kertesz, Stefan ; Davies, Susan ; Turan, Janet M. / Using Patient Perspectives to Inform the Development of a Behavioral Intervention for Chronic Pain in Patients with HIV : A Qualitative Study. In: Pain medicine (Malden, Mass.). 2017 ; Vol. 18, No. 5. pp. 879-888.
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