Utility of Patient-Reported Outcome Instruments in Heart Failure

Anita A. Kelkar, John Spertus, Peter Pang, Renee F. Pierson, Robert J. Cody, Ileana L. Pina, Adrian Hernandez, Javed Butler

Research output: Contribution to journalArticle

26 Citations (Scopus)

Abstract

Patient-reported outcomes (PRO) are defined as reports coming directly from patients about how they feel or function in relation to a health condition and its therapy. Although there are numerous compelling reasons why PRO could be an important help in clinical care, they have not evolved into clinical tools integrated into care. The purpose of this review is to assess existing PRO instruments for heart failure with respect to their psychometric properties and potential for use in clinical care. We performed a systematic search of articles published between July 2008 and January 2015 within the MEDLINE, PROMIS, PROQOLID, and Cochrane Library databases. Included instruments had to be developed and tested for heart failure and have had their development processes and psychometric properties described. A total of 31 instruments were identified, 9 of which met all inclusion criteria. After evaluating each remaining instrument in terms of psychometric and clinical criteria and symptom coverage, only 2 instruments-Minnesota Living with Heart Failure and Kansas City Cardiomyopathy questionnaire-met all evaluation criteria. Although clinically useful PRO instruments exist, increasing education to providers on the value and interpretability of PRO instruments, as well as a more streamlined approach to their implementation in the clinical setting is necessary. A clinical trial comparing the routine use of disease-specific PRO with clinical care could further support their incorporation into practice.

Original languageEnglish (US)
Pages (from-to)165-175
Number of pages11
JournalJACC: Heart Failure
Volume4
Issue number3
DOIs
StatePublished - Mar 1 2016

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Heart Failure
Psychometrics
Cardiomyopathies
MEDLINE
Libraries
Patient Reported Outcome Measures
Clinical Trials
Databases
Education
Health
Therapeutics

Keywords

  • Heart failure
  • Patient-reported outcomes

ASJC Scopus subject areas

  • Cardiology and Cardiovascular Medicine

Cite this

Kelkar, A. A., Spertus, J., Pang, P., Pierson, R. F., Cody, R. J., Pina, I. L., ... Butler, J. (2016). Utility of Patient-Reported Outcome Instruments in Heart Failure. JACC: Heart Failure, 4(3), 165-175. https://doi.org/10.1016/j.jchf.2015.10.015

Utility of Patient-Reported Outcome Instruments in Heart Failure. / Kelkar, Anita A.; Spertus, John; Pang, Peter; Pierson, Renee F.; Cody, Robert J.; Pina, Ileana L.; Hernandez, Adrian; Butler, Javed.

In: JACC: Heart Failure, Vol. 4, No. 3, 01.03.2016, p. 165-175.

Research output: Contribution to journalArticle

Kelkar, AA, Spertus, J, Pang, P, Pierson, RF, Cody, RJ, Pina, IL, Hernandez, A & Butler, J 2016, 'Utility of Patient-Reported Outcome Instruments in Heart Failure', JACC: Heart Failure, vol. 4, no. 3, pp. 165-175. https://doi.org/10.1016/j.jchf.2015.10.015
Kelkar, Anita A. ; Spertus, John ; Pang, Peter ; Pierson, Renee F. ; Cody, Robert J. ; Pina, Ileana L. ; Hernandez, Adrian ; Butler, Javed. / Utility of Patient-Reported Outcome Instruments in Heart Failure. In: JACC: Heart Failure. 2016 ; Vol. 4, No. 3. pp. 165-175.
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