Validation of an HIV/AIDS Stigma Measure for Children Living with HIV and Their Families

Rachel Christine Vreeman, Michael Lawrence Scanlon, Wanzhu Tu, James Slaven, Carole McAteer, Josephine Aluoch, Samuel Ayaya, Winstone Mokaya Nyandiko

Research output: Contribution to journalArticle

Abstract

Background: There are few validated tools to measure stigma, particularly among children living with HIV and their families. Methods: This study was nested within a larger study that followed 240 child–caregiver dyads (children aged 10-15 years) at 8 clinics in western Kenya. The stigma instrument was administered to all child–caregiver dyads at 2 time points 6 months apart. The primary end point was to construct validity assessed by comparison to criterion constructs using generalized estimating equation models. Results: Mean age of child participants was 12.3 years and 52% were female. Generally, caregivers reported experiencing higher levels of HIV stigma compared to their children. Children (9%) and caregivers (14%) reported that HIV stigma made them feel stressed, anxious, and depressed. Child and caregiver stigma items showed high construct validity by emotional and behavioral outcomes. Conclusions: The stigma instrument showed high validity when compared to emotional and behavioral outcomes.

Original languageEnglish (US)
JournalJournal of the International Association of Providers of AIDS Care
Volume18
DOIs
StatePublished - Jan 1 2019

Fingerprint

Acquired Immunodeficiency Syndrome
HIV
Caregivers
Kenya

Keywords

  • children
  • HIV/AIDS
  • Kenya
  • stigma
  • validation study

ASJC Scopus subject areas

  • Immunology
  • Dermatology
  • Infectious Diseases

Cite this

Validation of an HIV/AIDS Stigma Measure for Children Living with HIV and Their Families. / Vreeman, Rachel Christine; Scanlon, Michael Lawrence; Tu, Wanzhu; Slaven, James; McAteer, Carole; Aluoch, Josephine; Ayaya, Samuel; Nyandiko, Winstone Mokaya.

In: Journal of the International Association of Providers of AIDS Care, Vol. 18, 01.01.2019.

Research output: Contribution to journalArticle

Vreeman, Rachel Christine ; Scanlon, Michael Lawrence ; Tu, Wanzhu ; Slaven, James ; McAteer, Carole ; Aluoch, Josephine ; Ayaya, Samuel ; Nyandiko, Winstone Mokaya. / Validation of an HIV/AIDS Stigma Measure for Children Living with HIV and Their Families. In: Journal of the International Association of Providers of AIDS Care. 2019 ; Vol. 18.
@article{08864379117a42fd9a5bd7fa1214fb85,
title = "Validation of an HIV/AIDS Stigma Measure for Children Living with HIV and Their Families",
abstract = "Background: There are few validated tools to measure stigma, particularly among children living with HIV and their families. Methods: This study was nested within a larger study that followed 240 child–caregiver dyads (children aged 10-15 years) at 8 clinics in western Kenya. The stigma instrument was administered to all child–caregiver dyads at 2 time points 6 months apart. The primary end point was to construct validity assessed by comparison to criterion constructs using generalized estimating equation models. Results: Mean age of child participants was 12.3 years and 52{\%} were female. Generally, caregivers reported experiencing higher levels of HIV stigma compared to their children. Children (9{\%}) and caregivers (14{\%}) reported that HIV stigma made them feel stressed, anxious, and depressed. Child and caregiver stigma items showed high construct validity by emotional and behavioral outcomes. Conclusions: The stigma instrument showed high validity when compared to emotional and behavioral outcomes.",
keywords = "children, HIV/AIDS, Kenya, stigma, validation study",
author = "Vreeman, {Rachel Christine} and Scanlon, {Michael Lawrence} and Wanzhu Tu and James Slaven and Carole McAteer and Josephine Aluoch and Samuel Ayaya and Nyandiko, {Winstone Mokaya}",
year = "2019",
month = "1",
day = "1",
doi = "10.1177/2325958219880570",
language = "English (US)",
volume = "18",
journal = "Journal of the International Association of Providers of AIDS Care",
issn = "2325-9574",
publisher = "SAGE Publications Inc.",

}

TY - JOUR

T1 - Validation of an HIV/AIDS Stigma Measure for Children Living with HIV and Their Families

AU - Vreeman, Rachel Christine

AU - Scanlon, Michael Lawrence

AU - Tu, Wanzhu

AU - Slaven, James

AU - McAteer, Carole

AU - Aluoch, Josephine

AU - Ayaya, Samuel

AU - Nyandiko, Winstone Mokaya

PY - 2019/1/1

Y1 - 2019/1/1

N2 - Background: There are few validated tools to measure stigma, particularly among children living with HIV and their families. Methods: This study was nested within a larger study that followed 240 child–caregiver dyads (children aged 10-15 years) at 8 clinics in western Kenya. The stigma instrument was administered to all child–caregiver dyads at 2 time points 6 months apart. The primary end point was to construct validity assessed by comparison to criterion constructs using generalized estimating equation models. Results: Mean age of child participants was 12.3 years and 52% were female. Generally, caregivers reported experiencing higher levels of HIV stigma compared to their children. Children (9%) and caregivers (14%) reported that HIV stigma made them feel stressed, anxious, and depressed. Child and caregiver stigma items showed high construct validity by emotional and behavioral outcomes. Conclusions: The stigma instrument showed high validity when compared to emotional and behavioral outcomes.

AB - Background: There are few validated tools to measure stigma, particularly among children living with HIV and their families. Methods: This study was nested within a larger study that followed 240 child–caregiver dyads (children aged 10-15 years) at 8 clinics in western Kenya. The stigma instrument was administered to all child–caregiver dyads at 2 time points 6 months apart. The primary end point was to construct validity assessed by comparison to criterion constructs using generalized estimating equation models. Results: Mean age of child participants was 12.3 years and 52% were female. Generally, caregivers reported experiencing higher levels of HIV stigma compared to their children. Children (9%) and caregivers (14%) reported that HIV stigma made them feel stressed, anxious, and depressed. Child and caregiver stigma items showed high construct validity by emotional and behavioral outcomes. Conclusions: The stigma instrument showed high validity when compared to emotional and behavioral outcomes.

KW - children

KW - HIV/AIDS

KW - Kenya

KW - stigma

KW - validation study

UR - http://www.scopus.com/inward/record.url?scp=85072942057&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85072942057&partnerID=8YFLogxK

U2 - 10.1177/2325958219880570

DO - 10.1177/2325958219880570

M3 - Article

C2 - 31581890

AN - SCOPUS:85072942057

VL - 18

JO - Journal of the International Association of Providers of AIDS Care

JF - Journal of the International Association of Providers of AIDS Care

SN - 2325-9574

ER -