Viewpoint

A Pragmatic Approach to Constructing a Minimum Data Set for Care of Patients with HIV in Developing Countries

William M. Tierney, Eduard J. Beck, Reed M. Gardner, Beverly Musick, Mark Shields, Naomi M. Shiyonga, Mark H. Spohr

Research output: Contribution to journalArticle

21 Citations (Scopus)

Abstract

Providing quality health care requires access to continuous patient data that developing countries often lack. A panel of medical informatics specialists, clinical human immunodeficiency virus (HIV) specialists, and program managers suggests a minimum data set for supporting the management and monitoring of patients with HIV and their care programs in developing countries. The proposed minimum data set consists of data for registration and scheduling, monitoring and improving practice management, and describing clinical encounters and clinical care. Data should be numeric or coded using standard definitions and minimal free text. To enhance accuracy, efficiency, and availability, data should be recorded electronically by those generating them. Data elements must be sufficiently detailed to support clinical algorithms/guidelines and aggregation into broader categories for consumption by higher level users (e.g., national and international health care agencies). The proposed minimum data set will evolve over time as funding increases, care protocols change, and additional tests and treatments become available for HIV-infected patients in developing countries.

Original languageEnglish
Pages (from-to)253-260
Number of pages8
JournalJournal of the American Medical Informatics Association
Volume13
Issue number3
DOIs
StatePublished - May 2006

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Developing Countries
Patient Care
HIV
Medical Informatics
Quality of Health Care
Practice Management
Physiologic Monitoring
Guidelines
Delivery of Health Care
Datasets
Therapeutics

ASJC Scopus subject areas

  • Medicine(all)

Cite this

Viewpoint : A Pragmatic Approach to Constructing a Minimum Data Set for Care of Patients with HIV in Developing Countries. / Tierney, William M.; Beck, Eduard J.; Gardner, Reed M.; Musick, Beverly; Shields, Mark; Shiyonga, Naomi M.; Spohr, Mark H.

In: Journal of the American Medical Informatics Association, Vol. 13, No. 3, 05.2006, p. 253-260.

Research output: Contribution to journalArticle

Tierney, William M. ; Beck, Eduard J. ; Gardner, Reed M. ; Musick, Beverly ; Shields, Mark ; Shiyonga, Naomi M. ; Spohr, Mark H. / Viewpoint : A Pragmatic Approach to Constructing a Minimum Data Set for Care of Patients with HIV in Developing Countries. In: Journal of the American Medical Informatics Association. 2006 ; Vol. 13, No. 3. pp. 253-260.
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