Visually storying living with HIV

Bridging stressors and supports in accessing care

Stuart Schrader, E. N. Deering, D. A. Zahl, M. Wallace

Research output: Contribution to journalArticle

11 Citations (Scopus)

Abstract

This paper examines how visual narratives may bridge relational understandings between people living with HIV/AIDS (PLWH/A) and future oral health care providers. Borrowing from literature in participatory visual methods such as photo elicitation and photovoice, we explored how PLWH/A visually choose to represent their daily lives. This study uses a grounded theory action-oriented approach in examining the thematic analysis of 257 photos and 12 related reflective participant journals. Ten collaborative themes emerged from the participants' analysis of their photos. These themes of social support, places, family, staff, group, recovery tools, transportation, friends, medications and food exhibited the indivisible characteristics of stressors and supports commonly found in accessing care. Further researcher reflections also found three meta-themes of stigmatization, maintenance of positive mental health and the development of pride in managing one's health. PLWH/A need to share these visual themes of supports and stressors with future dental providers so that they may hopefully acquire an understanding of chronic illness that is more personalized and relationship centered rather than merely numeric and detached.

Original languageEnglish (US)
Pages (from-to)638-652
Number of pages15
JournalHealth Education Research
Volume26
Issue number4
DOIs
StatePublished - Aug 1 2011

Fingerprint

Acquired Immunodeficiency Syndrome
AIDS
HIV
Stereotyping
stigmatization
Oral Health
grounded theory
Social Support
Health Personnel
chronic illness
social support
Tooth
Mental Health
medication
Chronic Disease
mental health
Research Personnel
health care
food
staff

ASJC Scopus subject areas

  • Education
  • Public Health, Environmental and Occupational Health

Cite this

Visually storying living with HIV : Bridging stressors and supports in accessing care. / Schrader, Stuart; Deering, E. N.; Zahl, D. A.; Wallace, M.

In: Health Education Research, Vol. 26, No. 4, 01.08.2011, p. 638-652.

Research output: Contribution to journalArticle

Schrader, Stuart ; Deering, E. N. ; Zahl, D. A. ; Wallace, M. / Visually storying living with HIV : Bridging stressors and supports in accessing care. In: Health Education Research. 2011 ; Vol. 26, No. 4. pp. 638-652.
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